The Cancer and Care Giver Experience survey was a follow-up questionnaire distributed to ATP participants between 2024-2025. This optional survey was given after completion of the Lung Cancer Risk Factors Survey. This survey gathered information about people’s experience with the cancer care system due to their own diagnosis or through caregiving for a loved one with cancer. This data can be used by groups within Alberta Health Services and elsewhere who are interested in better understanding the experiences, needs, and gaps in support of patients and caregivers.
| Var ID | Var Name | Label | Description | Type | Valid Values | Unit | |
| 26219 | CSC_CE_ACTIVITIES_C1 | Providing support to loved one with activites. Transportation | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Transportation (e.g., errands, getting to medical appointments, getting to social events) | Coded | 0, 1, 8888, 9999 |
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| 26220 | CSC_CE_ACTIVITIES_C10 | Providing support to loved one with activites. Interpreting or explaining medical information and details | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Interpreting or explaining medical information and details | Coded | 0, 1, 8888, 9999 |
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| 26221 | CSC_CE_ACTIVITIES_C11 | Providing support to loved one with activites. Coordinating community supports | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Coordinating community supports (with neighbours, colleagues, friends and family) | Coded | 0, 1, 8888, 9999 |
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| 26222 | CSC_CE_ACTIVITIES_C12 | Providing support to loved one with activites. Coordinating counselling and peer supports | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Coordinating counselling and peer supports | Coded | 0, 1, 8888, 9999 |
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| 26223 | CSC_CE_ACTIVITIES_C13 | Providing support to loved one with activites. Education and expectations management with family and friends | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Education and expectations management with family and friends | Coded | 0, 1, 8888, 9999 |
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| 26224 | CSC_CE_ACTIVITIES_C14 | Providing support to loved one with activites. Some other activity | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Some other activity | Coded | 0, 1, 8888, 9999 |
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| 26225 | CSC_CE_ACTIVITIES_C15 | Providing support to loved one with activites. None of the above | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. None of the above | Coded | 0, 1, 8888, 9999 |
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| 26226 | CSC_CE_ACTIVITIES_C2 | Providing support to loved one with activites. Attending medical appointments | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Attending medical appointments | Coded | 0, 1, 8888, 9999 |
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| 26227 | CSC_CE_ACTIVITIES_C3 | Providing support to loved one with activites. Meal preparation, meal clean-up, house cleaning, or laundry | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Meal preparation, meal clean-up, house cleaning, or laundry | Coded | 0, 1, 8888, 9999 |
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| 26228 | CSC_CE_ACTIVITIES_C4 | Providing support to loved one with activites. House maintenance or outdoor work | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. House maintenance or outdoor work (e.g., house repairs, lawn maintenance, snow shovelling) | Coded | 0, 1, 8888, 9999 |
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| 26229 | CSC_CE_ACTIVITIES_C5 | Providing support to loved one with activites. Personal care | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Personal care (e.g., bathing, dressing, feeding) | Coded | 0, 1, 8888, 9999 |
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| 26230 | CSC_CE_ACTIVITIES_C6 | Providing support to loved one with activites. Medical treatments or procedures | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Medical treatments or procedures (e.g., changing bandages or dressings, taking medications, performing blood sugar tests) | Coded | 0, 1, 8888, 9999 |
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| 26231 | CSC_CE_ACTIVITIES_C7 | Providing support to loved one with activites. Scheduling or coordinating care-related tasks | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Scheduling or coordinating care-related tasks (e.g., organizing care schedule, making appointments, hiring professional hel | Coded | 0, 1, 8888, 9999 |
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| 26232 | CSC_CE_ACTIVITIES_C8 | Providing support to loved one with activites. Managing their finances | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Managing their finances (e.g., banking, bill paying, managing health insurance claims) | Coded | 0, 1, 8888, 9999 |
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| 26233 | CSC_CE_ACTIVITIES_C9 | Providing support to loved one with activites. Emotional support | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Emotional support (e.g., spending time with them, talking with and listening to them) | Coded | 0, 1, 8888, 9999 |
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| 26234 | CSC_CE_CANCER_DX_C1 | Type of cancer loved one diagnosed with. Bladder | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Bladder | Coded | 0, 1, 8888, 9999 |
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| 26235 | CSC_CE_CANCER_DX_C10 | Type of cancer loved one diagnosed with. Leukemia | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Leukemia | Coded | 0, 1, 8888, 9999 |
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| 26236 | CSC_CE_CANCER_DX_C11 | Type of cancer loved one diagnosed with. Liver | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Liver | Coded | 0, 1, 8888, 9999 |
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| 26237 | CSC_CE_CANCER_DX_C12 | Type of cancer loved one diagnosed with. Lung and/or bronchus | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Lung and/or bronchus | Coded | 0, 1, 8888, 9999 |
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| 26238 | CSC_CE_CANCER_DX_C13 | Type of cancer loved one diagnosed with. Hodgkin lymphoma | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Lymphoma (hodgkin lymphoma) | Coded | 0, 1, 8888, 9999 |
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| 26239 | CSC_CE_CANCER_DX_C14 | Type of cancer loved one diagnosed with. Non-hodgkin lymphoma | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Lymphoma (non-hodgkin lymphoma) | Coded | 0, 1, 8888, 9999 |
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| 26240 | CSC_CE_CANCER_DX_C15 | Type of cancer loved one diagnosed with. Mouth, tongue, and/or throat | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Mouth, tongue, and/or throat | Coded | 0, 1, 8888, 9999 |
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| 26241 | CSC_CE_CANCER_DX_C16 | Type of cancer loved one diagnosed with. Multiple myeloma | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Multiple myeloma | Coded | 0, 1, 8888, 9999 |
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| 26242 | CSC_CE_CANCER_DX_C17 | Type of cancer loved one diagnosed with. Ovary | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Ovary | Coded | 0, 1, 8888, 9999 |
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| 26243 | CSC_CE_CANCER_DX_C18 | Type of cancer loved one diagnosed with. Pancreas | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Pancreas | Coded | 0, 1, 8888, 9999 |
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| 26244 | CSC_CE_CANCER_DX_C19 | Type of cancer loved one diagnosed with. Prostate | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Prostate | Coded | 0, 1, 8888, 9999 |
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| 26245 | CSC_CE_CANCER_DX_C2 | Type of cancer loved one diagnosed with. Bone | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Bone (osteosarcoma and other sarcomas) | Coded | 0, 1, 8888, 9999 |
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| 26246 | CSC_CE_CANCER_DX_C20 | Type of cancer loved one diagnosed with. Rectum | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Rectum | Coded | 0, 1, 8888, 9999 |
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| 26247 | CSC_CE_CANCER_DX_C21 | Type of cancer loved one diagnosed with. Skin (melanoma) | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Skin (melanoma) | Coded | 0, 1, 8888, 9999 |
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| 26248 | CSC_CE_CANCER_DX_C22 | Type of cancer loved one diagnosed with. Skin (non-melanoma) | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Skin (non-melanoma) | Coded | 0, 1, 8888, 9999 |
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| 26249 | CSC_CE_CANCER_DX_C23 | Type of cancer loved one diagnosed with. Small intestine | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Small intestine | Coded | 0, 1, 8888, 9999 |
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| 26250 | CSC_CE_CANCER_DX_C24 | Type of cancer loved one diagnosed with. Stomach | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Stomach | Coded | 0, 1, 8888, 9999 |
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| 26251 | CSC_CE_CANCER_DX_C25 | Type of cancer loved one diagnosed with. Testicle | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Testicle | Coded | 0, 1, 8888, 9999 |
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| 26252 | CSC_CE_CANCER_DX_C26 | Type of cancer loved one diagnosed with. Thyroid | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Thyroid | Coded | 0, 1, 8888, 9999 |
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| 26253 | CSC_CE_CANCER_DX_C27 | Type of cancer loved one diagnosed with. Uterus | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Uterus | Coded | 0, 1, 8888, 9999 |
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| 26254 | CSC_CE_CANCER_DX_C28 | Type of cancer loved one diagnosed with. Other | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Other | Coded | 0, 1, 8888, 9999 |
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| 26255 | CSC_CE_CANCER_DX_C29 | Type of cancer loved one diagnosed with. Don't know | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Don't know | Coded | 0, 1, 8888, 9999 |
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| 26256 | CSC_CE_CANCER_DX_C3 | Type of cancer loved one diagnosed with. Brain | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Brain | Coded | 0, 1, 8888, 9999 |
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| 26257 | CSC_CE_CANCER_DX_C4 | Type of cancer loved one diagnosed with. Breast | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Breast | Coded | 0, 1, 8888, 9999 |
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| 26258 | CSC_CE_CANCER_DX_C5 | Type of cancer loved one diagnosed with. Cervix | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Cervix | Coded | 0, 1, 8888, 9999 |
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| 26259 | CSC_CE_CANCER_DX_C6 | Type of cancer loved one diagnosed with. Colon | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Colon | Coded | 0, 1, 8888, 9999 |
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| 26260 | CSC_CE_CANCER_DX_C7 | Type of cancer loved one diagnosed with. Esophagus | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Esophagus | Coded | 0, 1, 8888, 9999 |
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| 26261 | CSC_CE_CANCER_DX_C8 | Type of cancer loved one diagnosed with. Kidney | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Kidney | Coded | 0, 1, 8888, 9999 |
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| 26262 | CSC_CE_CANCER_DX_C9 | Type of cancer loved one diagnosed with. Larynx | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Larynx | Coded | 0, 1, 8888, 9999 |
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| 26263 | CSC_CE_CANCER_TX_C1 | Loved one cancer treatments during your caregiving - Chemotherapy | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Chemotherapy | Coded | 0, 1, 8888, 9999 |
Formats
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| 26264 | CSC_CE_CANCER_TX_C10 | Loved one cancer treatments during your caregiving - My loved one did not receive treatment | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? My loved one did not receive treatment | Coded | 0, 1, 8888, 9999 |
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| 26265 | CSC_CE_CANCER_TX_C11 | Loved one cancer treatments during your caregiving - Don’t know | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Don’t know | Coded | 0, 1, 8888, 9999 |
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| 26266 | CSC_CE_CANCER_TX_C2 | Loved one cancer treatments during your caregiving - Oral medications to treat their cancer | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Oral medications to treat their cancer | Coded | 0, 1, 8888, 9999 |
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| 26267 | CSC_CE_CANCER_TX_C3 | Loved one cancer treatments during your caregiving - Radiation | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Radiation | Coded | 0, 1, 8888, 9999 |
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| 26268 | CSC_CE_CANCER_TX_C4 | Loved one cancer treatments during your caregiving - Surgery | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Surgery | Coded | 0, 1, 8888, 9999 |
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| 26269 | CSC_CE_CANCER_TX_C5 | Loved one cancer treatments during your caregiving - Laser therapy | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Laser therapy | Coded | 0, 1, 8888, 9999 |
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| 26270 | CSC_CE_CANCER_TX_C6 | Loved one cancer treatments during your caregiving - Stem cell therapy | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Stem cell therapy | Coded | 0, 1, 8888, 9999 |
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| 26271 | CSC_CE_CANCER_TX_C7 | Loved one cancer treatments during your caregiving - Immunotherapy | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Immunotherapy | Coded | 0, 1, 8888, 9999 |
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| 26272 | CSC_CE_CANCER_TX_C8 | Loved one cancer treatments during your caregiving - Hormone therapy (including Tamoxifen) | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Hormone therapy (including Tamoxifen) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26273 | CSC_CE_CANCER_TX_C9 | Loved one cancer treatments during your caregiving - Other (please specify): | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Other (please specify): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26274 | CSC_CE_CAREGIVER | Caregiver for loved one with cancer | Do you identify as a primary caregiver for a loved one with a cancer diagnosis? If you have been a primary caregiver for multiple loved ones, please think about your most recent caregiver experience.? | Coded | 0, 1, 8888, 9999 |
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| 26283 | CSC_CE_DX_PROV | Loved one diagnosed in Alberta or elsewhere | Was your loved one diagnosed in Alberta or elsewhere? | Coded | 1-14, 99, 8888, 9999 |
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| 26284 | CSC_CE_IMPACT_DIET | Impact of caregiving on diet/nutrition | Please assess the impact of your caregiving activities on your: Diet/nutrition | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26285 | CSC_CE_IMPACT_EMOTION | Impact of caregiving on emotional health | Please assess the impact of your caregiving activities on your: Emotional health | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26286 | CSC_CE_IMPACT_FAMILY | Impact of caregiving on family life | Please assess the impact of your caregiving activities on your: Family life | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26287 | CSC_CE_IMPACT_FINANCES | Impact of caregiving on finances | Please assess the impact of your caregiving activities on your: Finances | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26288 | CSC_CE_IMPACT_OTHER | Impact of caregiving on other lifestyle | Please assess the impact of your caregiving activities on your: Other lifestyle (e.g., physical activity, sleep) | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26289 | CSC_CE_IMPACT_PERSONAL | Impact of caregiving on personal activites | Please assess the impact of your caregiving activities on your: Personal activities and/or self-care | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26295 | CSC_CE_IMPACT_PHYSICAL | Impact of caregiving on physical health | Please assess the impact of your caregiving activities on your: Physical health | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26296 | CSC_CE_IMPACT_PROF | Impact of caregiving on professional life | Please assess the impact of your caregiving activities on your: Professional life | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26297 | CSC_CE_IMPACT_REL | Impact of caregiving on relationship with loved one | Please assess the impact of your caregiving activities on your: Relationship with the loved one | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26298 | CSC_CE_IMPACT_SOCIAL | Impact of caregiving on social life | Please assess the impact of your caregiving activities on your: Social life | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26299 | CSC_CE_INFO_TOPICS_COMM | Were you and loved one given information for community resources | After completing cancer treatments, were you and your loved one given enough information about each of the following topics: Community resources | Coded | 0, 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26300 | CSC_CE_INFO_TOPICS_EMOT | Were you and loved one given information for emotional challenges | After completing cancer treatments, were you and your loved one given enough information about each of the following topics: Emotional challenges or concerns (e.g., depression, anxiety) | Coded | 0, 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26301 | CSC_CE_INFO_TOPICS_LIFE | Were you and loved one given information for lifestyle challenges | After completing cancer treatments, were you and your loved one given enough information about each of the following topics: Other lifestyle challenges or concerns (e.g., physical activity, sleep) | Coded | 0, 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26302 | CSC_CE_INFO_TOPICS_NUT | Were you and loved one given information for nutritional concerns | After completing cancer treatments, were you and your loved one given enough information about each of the following topics: Nutritional concerns (diet, changes in appetite, etc.) | Coded | 0, 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26303 | CSC_CE_INFO_TOPICS_PHYS | Were you and loved one given information for physical challenges | After completing cancer treatments, were you and your loved one given enough information about each of the following topics: Physical challenges or concerns (e.g., pain, fatigue) | Coded | 0, 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26304 | CSC_CE_INFO_TOPICS_PRAC | Were you and loved one given information for practical challenges | After completing cancer treatments, were you and your loved one given enough information about each of the following topics: Practical challenges or concerns (e.g., financial aid) | Coded | 0, 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26305 | CSC_CE_INFO_TOPICS_SIGN | Were you and loved one given information for signs of cancer returning | After completing cancer treatments, were you and your loved one given enough information about each of the following topics: Signs of cancer returning | Coded | 0, 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26306 | CSC_CE_LETTER | Did loved one receive written follow-up care plan | After completing cancer treatments, did your loved one receive a written plan or letter outlining what to expect for their follow-up care? | Coded | 0, 1, 2, 99, 8888, 9999 |
Formats
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| 26307 | CSC_CE_LETTER_INFO | Did this plan provide information needed | Did this plan or letter provide the information you and your loved one needed? | Coded | 0, 1, 2, 8888, 9999 |
Formats
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| 26308 | CSC_CE_LOVED_ONE | Describe your loved one | Which of the following best describes your loved one with a cancer diagnosis? | Coded | 1, 2, 3, 8888, 9999 |
Formats
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| 26309 | CSC_CE_LOVED_ONE_MOST_REC | Relationship to loved one | Who was the loved one you supported? (Please choose one option.) Again, if you have been a primary caregiver for multiple loved ones, please think about your most recent caregiver experience.? | Coded | 1-13, 8888, 9999 |
Formats
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| 26310 | CSC_CE_PCP_CC | Did provider know enough about loved one's treatment | When your loved one most recently saw their primary care provider, do you feel the provider knew enough about their cancer? | Coded | 0, 1, 2, 99, 8888, 9999 |
Formats
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| 26311 | CSC_CE_PCP_CC_COORD | Satisfication between cancer team and loved one's provider | Overall, how satisfied have you been with the coordination between the cancer care team and your loved one’s primary care provider? | Coded | 1, 2, 3, 4, 5, 6, 99, 8888, 9999 |
Formats
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| 26312 | CSC_CE_PCP_CURRENT | Does loved one currently have a primary care provider | Does your loved one currently have a primary care provider (such as a family doctor or community nurse practitioner)? | Coded | 0, 1, 99, 8888, 9999 |
Formats
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| 26313 | CSC_CE_PCP_DX | Did loved one have a primary care provider at diagnosis | Did your loved one have a primary care provider (such as a family doctor or community nurse practitioner) at the time of their diagnosis? | Coded | 0, 1, 99, 8888, 9999 |
Formats
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| 26314 | CSC_CE_PCP_TX | Did loved one have a primary care provider at treatments | Did your loved one have a primary care provider (such as a family doctor or community nurse practitioner) at the time they completed cancer treatments? | Coded | 0, 1, 2, 99, 8888, 9999 |
Formats
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| 26315 | CSC_CE_POST_TX_CARE_SAT | Satisfication with post-treatment follow up for loved one | Overall, how satisfied have you been/were you with your loved one’s post-treatment follow-up care? | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26316 | CSC_CE_SUPPORT_DIET | Caregiver supports and resources for diet/nutrition | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Diet/nutrition | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26317 | CSC_CE_SUPPORT_EMOTION | Caregiver supports and resources for emotional health | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Emotional health | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26318 | CSC_CE_SUPPORT_FAMILY | Caregiver supports and resources for family life | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Family life | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26319 | CSC_CE_SUPPORT_FINANCES | Caregiver supports and resources for finances | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Finances | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26320 | CSC_CE_SUPPORT_LIFE | Caregiver supports and resources for other lifestyle | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Other lifestyle (e.g., physical activity, sleep) | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26321 | CSC_CE_SUPPORT_OTH | Caregiver supports and resources for other | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Other | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26322 | CSC_CE_SUPPORT_PERSONAL | Caregiver supports and resources for personal activities | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Personal activities and/or self-care | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26323 | CSC_CE_SUPPORT_PHYSICAL | Caregiver supports and resources for physical health | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Physical health | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26324 | CSC_CE_SUPPORT_PROF | Caregiver supports and resources for professional life | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Professional life | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26325 | CSC_CE_SUPPORT_REL | Caregiver supports and resources for relationship with loved one | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Relationship with the loved one | Coded | 1, 2, 3, 4, 8888, 9999 |
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| 26326 | CSC_CE_SUPPORT_SOCIAL | Caregiver supports and resources for social life | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Social life | Coded | 1, 2, 3, 4, 8888, 9999 |
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| 26327 | CSC_CE_TOPICS_DISC_C1 | Topics cancer care provider discussed for loved one - Treatments | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? Treatments they would or would not want related to controlling their cancer | Coded | 0, 1, 8888, 9999 |
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| 26328 | CSC_CE_TOPICS_DISC_C2 | Topics cancer care provider discussed for loved one - Their values, spiritual beliefs, or other practices | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? Their values, spiritual beliefs, or other practices that are important to them as they make decisions about their health care | Coded | 0, 1, 8888, 9999 |
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| 26329 | CSC_CE_TOPICS_DISC_C3 | Topics cancer care provider discussed for loved one - Their fears and concerns | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? Their fears and concerns | Coded | 0, 1, 8888, 9999 |
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| 26330 | CSC_CE_TOPICS_DISC_C4 | Topics cancer care provider discussed for loved one - Prognosis | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? Prognosis (life expectancy, how their illness may progress) | Coded | 0, 1, 8888, 9999 |
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| 26334 | CSC_CE_TOPICS_DISC_C5 | Topics cancer care provider discussed for loved one - Advance Care Planning | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? Advance Care Planning and/or Goals of Care documentation | Coded | 0, 1, 8888, 9999 |
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| 26335 | CSC_CE_TOPICS_DISC_C6 | Topics cancer care provider discussed for loved one - Connecting with palliative care services | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? Connecting with palliative care services in the cancer program or community | Coded | 0, 1, 8888, 9999 |
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| 26336 | CSC_CE_TOPICS_DISC_C7 | Topics cancer care provider discussed for loved one - None of the above | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? None of the above | Coded | 0, 1, 8888, 9999 |
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| 26337 | CSC_CE_TOPICS_DISC_C8 | Topics cancer care provider discussed for loved one - I do not know if these conversations took place | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? I do not know if these conversations took place | Coded | 0, 1, 8888, 9999 |
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| 26338 | CSC_CE_TX_INTENT | Intent of recent treatment by loved one | What was the intent of your loved one’s most recent treatment(s)? | Coded | 1, 2, 3, 99, 8888, 9999 |
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| 26339 | CSC_CE_TX_PROV_C1 | Loved one treated in Alberta or elsewhere Alberta | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Alberta | Coded | 0, 1, 8888, 9999 |
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| 26340 | CSC_CE_TX_PROV_C10 | Loved one treated in Alberta or elsewhere Prince Edward Island | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Prince Edward Island | Coded | 0, 1, 8888, 9999 |
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| 26341 | CSC_CE_TX_PROV_C11 | Loved one treated in Alberta or elsewhere Quebec | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Quebec | Coded | 0, 1, 8888, 9999 |
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| 26342 | CSC_CE_TX_PROV_C12 | Loved one treated in Alberta or elsewhere Saskatchewan | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Saskatchewan | Coded | 0, 1, 8888, 9999 |
Formats
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| 26343 | CSC_CE_TX_PROV_C13 | Loved one treated in Alberta or elsewhere Yukon | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Yukon | Coded | 0, 1, 8888, 9999 |
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| 26344 | CSC_CE_TX_PROV_C14 | Loved one treated in Alberta or elsewhere Outside of Canada | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Outside of Canada | Coded | 0, 1, 8888, 9999 |
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| 26345 | CSC_CE_TX_PROV_C2 | Loved one treated in Alberta or elsewhere British Columbia | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. British Columbia | Coded | 0, 1, 8888, 9999 |
Formats
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| 26346 | CSC_CE_TX_PROV_C3 | Loved one treated in Alberta or elsewhere Manitoba | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Manitoba | Coded | 0, 1, 8888, 9999 |
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| 26347 | CSC_CE_TX_PROV_C4 | Loved one treated in Alberta or elsewhere New Brunswick | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. New Brunswick | Coded | 0, 1, 8888, 9999 |
Formats
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| 26348 | CSC_CE_TX_PROV_C5 | Loved one treated in Alberta or elsewhere Newfoundland and Labrador | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Newfoundland and Labrador | Coded | 0, 1, 8888, 9999 |
Formats
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| 26349 | CSC_CE_TX_PROV_C6 | Loved one treated in Alberta or elsewhere Northwest Territories | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Northwest Territories | Coded | 0, 1, 8888, 9999 |
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| 26350 | CSC_CE_TX_PROV_C7 | Loved one treated in Alberta or elsewhere Nova Scotia | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Nova Scotia | Coded | 0, 1, 8888, 9999 |
Formats
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| 26351 | CSC_CE_TX_PROV_C8 | Loved one treated in Alberta or elsewhere Nunavut | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Nunavut | Coded | 0, 1, 8888, 9999 |
Formats
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| 26352 | CSC_CE_TX_PROV_C9 | Loved one treated in Alberta or elsewhere Ontario | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Ontario | Coded | 0, 1, 8888, 9999 |
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| 26353 | CSC_CE_TX_STATEMENT | Type of cancer treatment for loved one | Which of the following statements best describes your loved one’s cancer treatment(s)? (Treatment includes surgery, radiation, chemo- or immunotherapy, oral medications, hormone therapy, and laser or stem cell therapy.) | Coded | 1, 2, 99, 8888, 9999 |
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| 26354 | CSC_CE_TX_YEAR | When loved one completed treatment | When did your loved one complete treatment? Please select the year if you’re not sure, use your best estimate. Year: | Coded | 1939-2025, 8888, 9999 | Year |
Formats
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| 26355 | CSC_CE_TX_YEAR_CA | When loved one completed treatment | When did your loved one complete treatment? Please select the year if you’re not sure, use your best estimate. Year: | Coded | 99, 8888, 9999 |
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| 26356 | CSC_CE_WAIT_TIMES_DX | Reasonable wait times for loved one for diagnosis | To what extent do you agree that the wait times for the following steps in your loved one’s care journey were reasonable? Diagnosis | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
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| 26357 | CSC_CE_WAIT_TIMES_SPEC | Reasonable wait times for loved one for specialist consult | To what extent do you agree that the wait times for the following steps in your loved one’s care journey were reasonable? Specialist consult | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
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| 26358 | CSC_CE_WAIT_TIMES_TX | Reasonable wait times for loved one for treatment | To what extent do you agree that the wait times for the following steps in your loved one’s care journey were reasonable? Treatment | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
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| 26450 | CSC_OTSP | Additional Comments | Is there anything else you would like to tell us about related to these topics? (Feel free to tell us whatever you’d like, but please refrain from including any information that could be identifying, such as names, specific locations, etc.). | Text | |||
| 26359 | CSC_PE_CAREGIVER_CHILDREN | While being a caregiver, did children under 18 live with you? | Earlier, you stated you were a caregiver for your [CSC_CE_LOVED_ONE_MOST_REC]. When you were a caregiver for this person, did you have children under 18 years of age living with you? | Coded | 0, 1, 88, 8888, 9999 |
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| 26360 | CSC_PE_CG_CHILD_SUP_REC_COMM_C1 | Information from cancer program about accessing supports for children. I received information about local cancer communities | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26361 | CSC_PE_CG_CHILD_SUP_REC_COMM_C2 | Information from cancer program about accessing supports for children. I wanted information about local cancer communities but did not receive it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). I wanted information about this service b | Coded | 0, 1, 8888, 9999 |
Formats
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| 26362 | CSC_PE_CG_CHILD_SUP_REC_COMM_C3 | Information from cancer program about accessing supports for children. I did not receive information about local cancer communities but did not need it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). I did not receive information about this | Coded | 0, 1, 8888, 9999 |
Formats
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| 26363 | CSC_PE_CG_CHILD_SUP_REC_COMM_C4 | Information from cancer program about accessing supports for children. Local cancer communities - unsure or can't remember | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26364 | CSC_PE_CG_CHILD_SUP_REC_COUN_C1 | Information from cancer program about accessing supports for children. I received information about counselling | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26365 | CSC_PE_CG_CHILD_SUP_REC_COUN_C2 | Information from cancer program about accessing supports for children. I wanted information about counselling but did not receive it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). I wanted information about this service but did not rec | Coded | 0, 1, 8888, 9999 |
Formats
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| 26366 | CSC_PE_CG_CHILD_SUP_REC_COUN_C3 | Information from cancer program about accessing supports for children. I did not receive information about counselling but did not need it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). I did not receive information about this service but di | Coded | 0, 1, 8888, 9999 |
Formats
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| 26367 | CSC_PE_CG_CHILD_SUP_REC_COUN_C4 | Information from cancer program about accessing supports for children. Counselling - unsure or can't remember | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26368 | CSC_PE_CG_CHILD_SUP_REC_MED_C1 | Information from cancer program about accessing supports for children. I received information about psychiatric support | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26372 | CSC_PE_CG_CHILD_SUP_REC_MED_C2 | Information from cancer program about accessing supports for children. I wanted information about psychiatric support but did not receive it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). I wanted information about this service but did not receive it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26373 | CSC_PE_CG_CHILD_SUP_REC_MED_C3 | Information from cancer program about accessing supports for children. I did not receive information about psychiatric support but did not need it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). I did not receive information about this service but did not ne | Coded | 0, 1, 8888, 9999 |
Formats
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| 26379 | CSC_PE_CG_CHILD_SUP_REC_MED_C4 | Information from cancer program about accessing supports for children. Psychiatric support - unsure or can't remember | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26380 | CSC_PE_CG_CHILD_SUP_REC_ONLINE_C1 | Information from cancer program about accessing supports for children. I received information about online cancer communities | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26381 | CSC_PE_CG_CHILD_SUP_REC_ONLINE_C2 | Information from cancer program about accessing supports for children. I wanted information about online cancer communities but did not receive it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. I wanted information about this service but did not receive it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26382 | CSC_PE_CG_CHILD_SUP_REC_ONLINE_C3 | Information from cancer program about accessing supports for children. I did not receive information about online cancer communities but did not need it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. I did not receive information about this service but did not need it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26383 | CSC_PE_CG_CHILD_SUP_REC_ONLINE_C4 | Information from cancer program about accessing supports for children. online cancer communities - unsure or can't remember | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26384 | CSC_PE_CG_CHILD_SUP_REC_OTH1_C1 | Information from cancer program about accessing supports for children. I received information about this other service | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26385 | CSC_PE_CG_CHILD_SUP_REC_OTH1_C2 | Information from cancer program about accessing supports for children. I wanted information about this other service but did not receive it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26386 | CSC_PE_CG_CHILD_SUP_REC_OTH1_C3 | Information from cancer program about accessing supports for children. I did not receive information about this other service but did not need it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26387 | CSC_PE_CG_CHILD_SUP_REC_OTH1_C4 | Information from cancer program about accessing supports for children. Other - unsure or can’t remember | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26388 | CSC_PE_CG_CHILD_SUP_REC_OTH2_C1 | Information from cancer program about accessing supports for children. I received information about this other service | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26389 | CSC_PE_CG_CHILD_SUP_REC_OTH2_C2 | Information from cancer program about accessing supports for children. I wanted information about this other service but did not receive it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26390 | CSC_PE_CG_CHILD_SUP_REC_OTH2_C3 | Information from cancer program about accessing supports for children. I did not receive information about this other service but did not need it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26391 | CSC_PE_CG_CHILD_SUP_REC_OTH2_C4 | Information from cancer program about accessing supports for children. Other - unsure or can’t remember | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26392 | CSC_PE_CG_CHILD_SUP_REC_OTH3_C1 | Information from cancer program about accessing supports for children. I received information about this other service | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26393 | CSC_PE_CG_CHILD_SUP_REC_OTH3_C2 | Information from cancer program about accessing supports for children. I wanted information about this other service but did not receive it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26394 | CSC_PE_CG_CHILD_SUP_REC_OTH3_C3 | Information from cancer program about accessing supports for children. I did not receive information about this other service but did not need it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26395 | CSC_PE_CG_CHILD_SUP_REC_OTH3_C4 | Information from cancer program about accessing supports for children. Other - unsure or can’t remember | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26411 | CSC_PE_CG_CHILD_SUP_REC_OTSP1 | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26396 | CSC_PE_CG_CHILD_SUP_REC_OTSP1_CA | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
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| 26412 | CSC_PE_CG_CHILD_SUP_REC_OTSP2 | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26397 | CSC_PE_CG_CHILD_SUP_REC_OTSP2_CA | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
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| 26413 | CSC_PE_CG_CHILD_SUP_REC_OTSP3 | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26398 | CSC_PE_CG_CHILD_SUP_REC_OTSP3_CA | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
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| 26399 | CSC_PE_CG_CHILD_SUP_USED_COMM_C1 | Supports used by your children. My children accessed local cancer communities | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26400 | CSC_PE_CG_CHILD_SUP_USED_COMM_C2 | Supports used by your children. My children did not access local cancer communities but would've benefitted from it | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26401 | CSC_PE_CG_CHILD_SUP_USED_COMM_C3 | Supports used by your children. My children did nto access local cancer communities and did not need to | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
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| 26402 | CSC_PE_CG_CHILD_SUP_USED_COMM_C4 | Supports used by your children. Local cancer communities - unsure or can't remember | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26403 | CSC_PE_CG_CHILD_SUP_USED_COUN_C1 | Supports used by your children. My children accessed counselling | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26404 | CSC_PE_CG_CHILD_SUP_USED_COUN_C2 | Supports used by your children. My children did not access counselling but would've benefitted from it | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26405 | CSC_PE_CG_CHILD_SUP_USED_COUN_C3 | Supports used by your children. My children did not access counselling and did not need to | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
|
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| 26406 | CSC_PE_CG_CHILD_SUP_USED_COUN_C4 | Supports used by your children. Counselling - unsure or can't remember | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26407 | CSC_PE_CG_CHILD_SUP_USED_MED_C1 | Supports used by your children. My children accessed psychiatric support | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26408 | CSC_PE_CG_CHILD_SUP_USED_MED_C2 | Supports used by your children. My children did not access psychiatric support but would've benefitted from it | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
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| 26409 | CSC_PE_CG_CHILD_SUP_USED_MED_C3 | Supports used by your children. My children did not access psychiatric support and did not need to | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26410 | CSC_PE_CG_CHILD_SUP_USED_MED_C4 | Supports used by your children. Psychiatric support - unsure or can't remember | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26414 | CSC_PE_CG_CHILD_SUP_USED_ONLINE_C1 | Supports used by your children. My children accessed online cancer communities | Which of the following best describes the supports your child/children used? Online cancer communities. My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
|
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| 26415 | CSC_PE_CG_CHILD_SUP_USED_ONLINE_C2 | Supports used by your children. My children did not access online cancer communities but woud've benefitted from it | Which of the following best describes the supports your child/children used? Online cancer communities. My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
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| 26416 | CSC_PE_CG_CHILD_SUP_USED_ONLINE_C3 | Supports used by your children. My children did not access online cancer communities and did nto need to | Which of the following best describes the supports your child/children used? Online cancer communities. My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
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| 26417 | CSC_PE_CG_CHILD_SUP_USED_ONLINE_C4 | Supports used by your children. Online cancer communities - unsure or can't remember | Which of the following best describes the supports your child/children used? Online cancer communities. Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26418 | CSC_PE_CG_CHILD_SUP_USED_OTH1_C1 | Supports used by your children. My children did not access this other service | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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|
| 26419 | CSC_PE_CG_CHILD_SUP_USED_OTH1_C2 | Supports used by your children. My children did not access this other service but would've benefitted from it | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
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|
| 26420 | CSC_PE_CG_CHILD_SUP_USED_OTH1_C3 | Supports used by your children. My children did not access this other service and did not need to | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26421 | CSC_PE_CG_CHILD_SUP_USED_OTH1_C4 | Supports used by your children. Other service - unsure or can't remember | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26422 | CSC_PE_CG_CHILD_SUP_USED_OTH2_C1 | Supports used by your children. My children did not access this other service | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26423 | CSC_PE_CG_CHILD_SUP_USED_OTH2_C2 | Supports used by your children. My children did not access this other service but would've benefitted from it | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26424 | CSC_PE_CG_CHILD_SUP_USED_OTH2_C3 | Supports used by your children. My children did not access this other service and did not need to | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26425 | CSC_PE_CG_CHILD_SUP_USED_OTH2_C4 | Supports used by your children. Other service - unsure or can't remember | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26426 | CSC_PE_CG_CHILD_SUP_USED_OTH3_C1 | Supports used by your children. My children did not access this other service | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26427 | CSC_PE_CG_CHILD_SUP_USED_OTH3_C2 | Supports used by your children. My children did not access this other service but would've benefitted from it | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26428 | CSC_PE_CG_CHILD_SUP_USED_OTH3_C3 | Supports used by your children. My children did not access this other service and did not need to | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26429 | CSC_PE_CG_CHILD_SUP_USED_OTH3_C4 | Supports used by your children. Other service - unsure or can't remember | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26446 | CSC_PE_CG_CHILD_SUP_USED_OTSP1 | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Text | |||
| 26430 | CSC_PE_CG_CHILD_SUP_USED_OTSP1_CA | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
|
|
| 26447 | CSC_PE_CG_CHILD_SUP_USED_OTSP2 | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Text | |||
| 26431 | CSC_PE_CG_CHILD_SUP_USED_OTSP2_CA | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
|
|
| 26448 | CSC_PE_CG_CHILD_SUP_USED_OTSP3 | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Text | |||
| 26432 | CSC_PE_CG_CHILD_SUP_USED_OTSP3_CA | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
|
|
| 26433 | CSC_PE_CG_CHILDREN_EXPLAIN | Ability to communicate loved one's cancer diagnosis to children | Using the information provided by the cancer program, do you feel you were able to effectively explain your loved one’s cancer diagnosis to your children? | Coded | 0, 1, 2, 8888, 9999 |
Formats
|
|
| 26434 | CSC_PE_CG_SUPPORT_VIRTUAL | Preference for in-person or virtual supports | Would you have preferred in-person or virtual supports? | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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|
| 26435 | CSC_PE_CHILDREN | Children under 18 living with you when diagnosed | When you were diagnosed with cancer, did you have children under 18 years of age living with you? | Coded | 0, 1, 88, 8888, 9999 |
Formats
|
|
| 26290 | CSC_PE_CHILDREN_0_2_NUM | Number of children between 0-2 | How many children between the ages of 0 and 2? | Unk | Children | ||
| 26293 | CSC_PE_CHILDREN_10_14_NUM | Number of children between 10-14 | How many children between the ages of 10 and 14? | Unk | Children | ||
| 26294 | CSC_PE_CHILDREN_15_17_NUM | Number of children between 15-17 | How many children between the ages of 15 and 17? | Unk | Children | ||
| 26291 | CSC_PE_CHILDREN_3_5_NUM | Number of children between 3-5 | How many children between the ages of 3 and 5? | Unk | Children | ||
| 26292 | CSC_PE_CHILDREN_6_9_NUM | Number of children between 6-9 | How many children between the ages of 6 and 9? | Unk | Children | ||
| 26464 | CSC_PE_CHILDREN_DETAILS_OTSP | Additional comments about support child received | If you are comfortable, please provide more details for your child (or each of your children) about supports they received, including the age at which the support was utilized. Feel free to tell us whatever you’d like, but please refrain from including an | Text | |||
| 26469 | CSC_PE_CHILDREN_DETAILS_OTSP2 | Additional comments about support child received | If you are comfortable, please provide more details for your child (or each of your children) about supports they received, including the age at which the support was utilized. Feel free to tell us whatever you’d like, but please refrain from including an | Text | |||
| 26374 | CSC_PE_CHILDREN_DX_0_2_NUM | Number of children 0-2 | How many children between the ages of 0 and 2? | Unk | Children | ||
| 26377 | CSC_PE_CHILDREN_DX_10_14_NUM | Number of children 10-14 | How many children between the ages of 10 and 14? | Unk | Children | ||
| 26378 | CSC_PE_CHILDREN_DX_15_17_NUM | Number of children 15-17 | How many children between the ages of 15 and 17? | Unk | Children | ||
| 26375 | CSC_PE_CHILDREN_DX_3_5_NUM | Number of children 3-5 | How many children between the ages of 3 and 5? | Unk | Children | ||
| 26376 | CSC_PE_CHILDREN_DX_6_9_NUM | Number of children 6-9 | How many children between the ages of 6 and 9? | Unk | Children | ||
| 26436 | CSC_PE_CHILDREN_EXPLAIN | Ability to communicate cancer diagnosis to children | Using the information provided by the cancer program, do you feel you were able to effectively explain your cancer diagnosis to your children? | Coded | 0, 1, 2, 8888, 9999 |
Formats
|
|
| 26437 | CSC_PE_CHILDREN_GROUP_C1 | Number of children you had during cancer diagnosis. 0-2 years. | How many children did you have at the time of your cancer diagnosis and in which age groups? 0-2 years of age | Coded | 0, 1, 8888, 9999 |
Formats
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|
| 26438 | CSC_PE_CHILDREN_GROUP_C2 | Number of children you had during cancer diagnosis. 3-5 years. | How many children did you have at the time of your cancer diagnosis and in which age groups? 3-5 years of age | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26439 | CSC_PE_CHILDREN_GROUP_C3 | Number of children you had during cancer diagnosis. 6-9 years. | How many children did you have at the time of your cancer diagnosis and in which age groups? 6-9 years of age | Coded | 0, 1, 8888, 9999 |
Formats
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|
| 26440 | CSC_PE_CHILDREN_GROUP_C4 | Number of children you had during cancer diagnosis. 10-14 years. | How many children did you have at the time of your cancer diagnosis and in which age groups? 10-14 years of age | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26441 | CSC_PE_CHILDREN_GROUP_C5 | Number of children you had during cancer diagnosis. 15-17 years. | How many children did you have at the time of your cancer diagnosis and in which age groups? 15-17 years of age | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26442 | CSC_PE_CHILDREN_GROUP_DX_C1 | Number of children you had during cancer diagnosis of loved one. 0-2 years. | How many children did you have at the time of your loved one’s diagnosis and in which age groups? 0-2 years of age | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26443 | CSC_PE_CHILDREN_GROUP_DX_C2 | Number of children you had during cancer diagnosis of loved one. 3-5 years. | How many children did you have at the time of your loved one’s diagnosis and in which age groups? 3-5 years of age | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26444 | CSC_PE_CHILDREN_GROUP_DX_C3 | Number of children you had during cancer diagnosis of loved one. 6-9 years. | How many children did you have at the time of your loved one’s diagnosis and in which age groups? 6-9 years of age | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26445 | CSC_PE_CHILDREN_GROUP_DX_C4 | Number of children you had during cancer diagnosis of loved one. 10-14 years. | How many children did you have at the time of your loved one’s diagnosis and in which age groups? 10-14 years of age | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26449 | CSC_PE_CHILDREN_GROUP_DX_C5 | Number of children you had during cancer diagnosis of loved one. 15-17 years. | How many children did you have at the time of your loved one’s diagnosis and in which age groups? 15-17 years of age | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26451 | CSC_PE_CHILDREN_SUPPORT_COMM_C1 | Information from cancer program about accessing supports for children. I received information about local cancer communities | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). I received information about this ser | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26452 | CSC_PE_CHILDREN_SUPPORT_COMM_C2 | Information from cancer program about accessing supports for children. I wanted information about local cancer communities but did not receive it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). I wanted information about this servi | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26453 | CSC_PE_CHILDREN_SUPPORT_COMM_C3 | Information from cancer program about accessing supports for children. I did not receive information about local cancer communities but did not need it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). I did not receive information about t | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26454 | CSC_PE_CHILDREN_SUPPORT_COMM_C4 | Information from cancer program about accessing supports for children. Local cancer communities - unsure or can't remember | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26455 | CSC_PE_CHILDREN_SUPPORT_COUN_C1 | Information from cancer program about accessing supports for children. I received information about counselling | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26456 | CSC_PE_CHILDREN_SUPPORT_COUN_C2 | Information from cancer program about accessing supports for children. I wanted information about counselling but did not receive it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). I wanted information about this service but did not | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26457 | CSC_PE_CHILDREN_SUPPORT_COUN_C3 | Information from cancer program about accessing supports for children. I did not receive information about counselling but did not need it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). I did not receive information about this service bu | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26458 | CSC_PE_CHILDREN_SUPPORT_COUN_C4 | Information from cancer program about accessing supports for children. Counselling - unsure or can't remember | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26460 | CSC_PE_CHILDREN_SUPPORT_MED_C1 | Information from cancer program about accessing supports for children. I received information about psychiatric support | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26461 | CSC_PE_CHILDREN_SUPPORT_MED_C2 | Information from cancer program about accessing supports for children. I wanted information about psychiatric support but did not receive it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). I wanted information about this service but did not receive | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26462 | CSC_PE_CHILDREN_SUPPORT_MED_C3 | Information from cancer program about accessing supports for children. I did not receive information about psychiatric support but did not need it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). I did not receive information about this service but did no | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26463 | CSC_PE_CHILDREN_SUPPORT_MED_C4 | Information from cancer program about accessing supports for children. Psychiatric support - unsure or can't remember | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26465 | CSC_PE_CHILDREN_SUPPORT_ONLINE_C1 | Information from cancer program about accessing supports for children. I received information about online cancer communities | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26466 | CSC_PE_CHILDREN_SUPPORT_ONLINE_C2 | Information from cancer program about accessing supports for children. I wanted information about online cancer communities but did not receive it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. I wanted information about this service but did not receive it | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26467 | CSC_PE_CHILDREN_SUPPORT_ONLINE_C3 | Information from cancer program about accessing supports for children. I did not receive information about online cancer communities but did not need it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. I did not receive information about this service but did not need it | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26468 | CSC_PE_CHILDREN_SUPPORT_ONLINE_C4 | Information from cancer program about accessing supports for children. Online cancer communities - unsure or can't remember | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26470 | CSC_PE_CHILDREN_SUPPORT_OTH1_C1 | Information from cancer program about accessing supports for children. I received information about this other service | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26471 | CSC_PE_CHILDREN_SUPPORT_OTH1_C2 | Information from cancer program about accessing supports for children. I wanted information about this other service but did not receive it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I wanted information about this service but did not rec | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26472 | CSC_PE_CHILDREN_SUPPORT_OTH1_C3 | Information from cancer program about accessing supports for children. I did not receive information about this other service but did not need it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I did not receive information about this service but di | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26473 | CSC_PE_CHILDREN_SUPPORT_OTH1_C4 | Information from cancer program about accessing supports for children. Other - unsure or can’t remember | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26474 | CSC_PE_CHILDREN_SUPPORT_OTH2_C1 | Information from cancer program about accessing supports for children. I received information about this other service | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26475 | CSC_PE_CHILDREN_SUPPORT_OTH2_C2 | Information from cancer program about accessing supports for children. I wanted information about this other service but did not receive it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I wanted information about this service but did not rec | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26476 | CSC_PE_CHILDREN_SUPPORT_OTH2_C3 | Information from cancer program about accessing supports for children. I did not receive information about this other service but did not need it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I did not receive information about this service but di | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26477 | CSC_PE_CHILDREN_SUPPORT_OTH2_C4 | Information from cancer program about accessing supports for children. Other - unsure or can’t remember | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26478 | CSC_PE_CHILDREN_SUPPORT_OTH3_C1 | Information from cancer program about accessing supports for children. I received information about this other service | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26479 | CSC_PE_CHILDREN_SUPPORT_OTH3_C2 | Information from cancer program about accessing supports for children. I wanted information about this other service but did not receive it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I wanted information about this service but did not rec | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26480 | CSC_PE_CHILDREN_SUPPORT_OTH3_C3 | Information from cancer program about accessing supports for children. I did not receive information about this other service but did not need it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I did not receive information about this service but di | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26482 | CSC_PE_CHILDREN_SUPPORT_OTH3_C4 | Information from cancer program about accessing supports for children. Other - unsure or can’t remember | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26331 | CSC_PE_CHILDREN_SUPPORT_OTSP1 | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26483 | CSC_PE_CHILDREN_SUPPORT_OTSP1_CA | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
|
|
| 26332 | CSC_PE_CHILDREN_SUPPORT_OTSP2 | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26484 | CSC_PE_CHILDREN_SUPPORT_OTSP2_CA | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
|
|
| 26333 | CSC_PE_CHILDREN_SUPPORT_OTSP3 | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26485 | CSC_PE_CHILDREN_SUPPORT_OTSP3_CA | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
|
|
| 26486 | CSC_PE_CHILDREN_SUPPORT_USED_COMM_C1 | Supports used by your children. My children accessed local cancer communities | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26487 | CSC_PE_CHILDREN_SUPPORT_USED_COMM_C2 | Supports used by your children. My children did not access local cancer communities but would've benefitted from it | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26488 | CSC_PE_CHILDREN_SUPPORT_USED_COMM_C3 | Supports used by your children. My children did not access local cancer communities and did not need to | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26489 | CSC_PE_CHILDREN_SUPPORT_USED_COMM_C4 | Supports used by your children. Local cancer communities - unsure or can't remember | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26490 | CSC_PE_CHILDREN_SUPPORT_USED_COUN_C1 | Supports used by your children. My children accessed counselling | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26491 | CSC_PE_CHILDREN_SUPPORT_USED_COUN_C2 | Supports used by your children. My children did not access counselling but would’ve benefitted from it | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26492 | CSC_PE_CHILDREN_SUPPORT_USED_COUN_C3 | Supports used by your children. My children did not access counselling and did not need to | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26493 | CSC_PE_CHILDREN_SUPPORT_USED_COUN_C4 | Supports used by your children. Counselling - unsure or can't remember | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26494 | CSC_PE_CHILDREN_SUPPORT_USED_MED_C1 | Supports used by your children. My children accessed psychiatric support | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26495 | CSC_PE_CHILDREN_SUPPORT_USED_MED_C2 | Supports used by your children. My children did not access psychiatric support but would've benefitted from it | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
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|
| 26496 | CSC_PE_CHILDREN_SUPPORT_USED_MED_C3 | Supports used by your children. My children did not access psychiatric support and did not need to | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
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|
| 26497 | CSC_PE_CHILDREN_SUPPORT_USED_MED_C4 | Supports used by your children. Psychiatric support - unsure or can't remember | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26498 | CSC_PE_CHILDREN_SUPPORT_USED_ONLINE_C1 | Supports used by your children. My children accessed online cancer communities | Which of the following best describes the supports your child/children used? Online cancer communities. My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
|
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| 26499 | CSC_PE_CHILDREN_SUPPORT_USED_ONLINE_C2 | Supports used by your children. My children did not access online cancer communities but would've benefitted from it | Which of the following best describes the supports your child/children used? Online cancer communities. My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
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| 26500 | CSC_PE_CHILDREN_SUPPORT_USED_ONLINE_C3 | Supports used by your children. My children did not access online cancer communities and did not need to | Which of the following best describes the supports your child/children used? Online cancer communities. My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
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| 26501 | CSC_PE_CHILDREN_SUPPORT_USED_ONLINE_C4 | Supports used by your children. Online cancer communities - unsure or can't remember | Which of the following best describes the supports your child/children used? Online cancer communities. Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
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| 26502 | CSC_PE_CHILDREN_SUPPORT_USED_OTH1_C1 | Supports used by your children. My children accessed this other service | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26503 | CSC_PE_CHILDREN_SUPPORT_USED_OTH1_C2 | Supports used by your children. My children did not access this other service but would've benefitted from it | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
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| 26504 | CSC_PE_CHILDREN_SUPPORT_USED_OTH1_C3 | Supports used by your children. My children did not access this other service and did not need to | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
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| 26505 | CSC_PE_CHILDREN_SUPPORT_USED_OTH1_C4 | Supports used by your children. Other - unsure or can’t remember | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26506 | CSC_PE_CHILDREN_SUPPORT_USED_OTH2_C1 | Supports used by your children. My children accessed this other service | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26507 | CSC_PE_CHILDREN_SUPPORT_USED_OTH2_C2 | Supports used by your children. My children did not access this other service but would've benefitted from it | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26508 | CSC_PE_CHILDREN_SUPPORT_USED_OTH2_C3 | Supports used by your children. My children did not access this other service and did not need to | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
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| 26509 | CSC_PE_CHILDREN_SUPPORT_USED_OTH2_C4 | Supports used by your children. Other - unsure or can’t remember | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26510 | CSC_PE_CHILDREN_SUPPORT_USED_OTH3_C1 | Supports used by your children. My children accessed this other service | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26511 | CSC_PE_CHILDREN_SUPPORT_USED_OTH3_C2 | Supports used by your children. My children did not access this other service but would've benefitted from it | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26512 | CSC_PE_CHILDREN_SUPPORT_USED_OTH3_C3 | Supports used by your children. My children did not access this other service and did not need to | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
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| 26513 | CSC_PE_CHILDREN_SUPPORT_USED_OTH3_C4 | Supports used by your children. Other - unsure or can’t remember | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26369 | CSC_PE_CHILDREN_SUPPORT_USED_OTSP1 | Supports used by children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26514 | CSC_PE_CHILDREN_SUPPORT_USED_OTSP1_CA | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
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| 26370 | CSC_PE_CHILDREN_SUPPORT_USED_OTSP2 | Supports used by children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26515 | CSC_PE_CHILDREN_SUPPORT_USED_OTSP2_CA | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
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| 26371 | CSC_PE_CHILDREN_SUPPORT_USED_OTSP3 | Supports used by children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26516 | CSC_PE_CHILDREN_SUPPORT_USED_OTSP3_CA | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
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| 26517 | CSC_PE_SUPPORT_TYPE | Preference for in-person or virtual supports | Would you have preferred in-person or virtual supports? | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26518 | CSC_PTE_CANCER_DX | Cancer Diagnosis | Have you ever received a cancer diagnosis?? | Coded | 0, 1, 8888, 9999 |
Formats
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| 26519 | CSC_PTE_CANCER_DX_PROV | Place of diagnosis | Were you diagnosed in Alberta or elsewhere?? | Coded | 1-14, 8888, 9999 |
Formats
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| 26520 | CSC_PTE_CANCER_TX | Type of cancer treatment | Which of the following statements best describes your cancer treatment(s) (including surgery): | Coded | 1, 2, 3, 88, 8888, 9999 |
Formats
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| 26521 | CSC_PTE_CANCER_TX_PROV_C1 | Treatment received in Alberta or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Alberta | Coded | 0, 1, 8888, 9999 |
Formats
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| 26522 | CSC_PTE_CANCER_TX_PROV_C10 | Treatment received in Prince Edward Island or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Prince Edward Island | Coded | 0, 1, 8888, 9999 |
Formats
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| 26523 | CSC_PTE_CANCER_TX_PROV_C11 | Treatment received in Quebec or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Quebec | Coded | 0, 1, 8888, 9999 |
Formats
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| 26524 | CSC_PTE_CANCER_TX_PROV_C12 | Treatment received in Saskatchewan or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Saskatchewan | Coded | 0, 1, 8888, 9999 |
Formats
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| 26525 | CSC_PTE_CANCER_TX_PROV_C13 | Treatment received in Yukon or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Yukon | Coded | 0, 1, 8888, 9999 |
Formats
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| 26526 | CSC_PTE_CANCER_TX_PROV_C14 | Treatment received in Outside of Canada or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Outside of Canada | Coded | 0, 1, 8888, 9999 |
Formats
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| 26527 | CSC_PTE_CANCER_TX_PROV_C2 | Treatment received in British Columbia or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. British Columbia | Coded | 0, 1, 8888, 9999 |
Formats
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| 26528 | CSC_PTE_CANCER_TX_PROV_C3 | Treatment received in Manitoba or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Manitoba | Coded | 0, 1, 8888, 9999 |
Formats
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| 26529 | CSC_PTE_CANCER_TX_PROV_C4 | Treatment received in New Brunswick or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. New Brunswick | Coded | 0, 1, 8888, 9999 |
Formats
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| 26530 | CSC_PTE_CANCER_TX_PROV_C5 | Treatment received in Newfoundland and Labrador or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Newfoundland and Labrador | Coded | 0, 1, 8888, 9999 |
Formats
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| 26531 | CSC_PTE_CANCER_TX_PROV_C6 | Treatment received in Northwest Territories or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Northwest Territories | Coded | 0, 1, 8888, 9999 |
Formats
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| 26532 | CSC_PTE_CANCER_TX_PROV_C7 | Treatment received in Nova Scotia or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Nova Scotia | Coded | 0, 1, 8888, 9999 |
Formats
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| 26533 | CSC_PTE_CANCER_TX_PROV_C8 | Treatment received in Nunavut or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Nunavut | Coded | 0, 1, 8888, 9999 |
Formats
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| 26534 | CSC_PTE_CANCER_TX_PROV_C9 | Treatment received in Ontario or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Ontario | Coded | 0, 1, 8888, 9999 |
Formats
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| 26535 | CSC_PTE_CANCER_TX_YEAR | Year of cancer treatment completion | When did you complete treatment? Please select the year if you’re not sure, use your best estimate.? Year: | Coded | 1939-2025, 8888, 9999 | Year |
Formats
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| 26536 | CSC_PTE_INFO_TOPICS_COMM | Given information on community resources | After completing cancer treatments, were you given enough information about each of the following topics: Community resources | Coded | 0, 1, 2, 3, 8888, 9999 |
Formats
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| 26537 | CSC_PTE_INFO_TOPICS_EMOT | Given information on emotional challenges | After completing cancer treatments, were you given enough information about each of the following topics: Emotional challenges or concerns (e.g., depression, anxiety) | Coded | 0, 1, 2, 3, 8888, 9999 |
Formats
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| 26538 | CSC_PTE_INFO_TOPICS_LIFE | Given information on lifestyle challenges | After completing cancer treatments, were you given enough information about each of the following topics: Other lifestyle challenges or concerns (e.g., physical activity, sleep) | Coded | 0, 1, 2, 3, 8888, 9999 |
Formats
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| 26539 | CSC_PTE_INFO_TOPICS_NUT | Given information on nutritional concerns | After completing cancer treatments, were you given enough information about each of the following topics: Nutritional concerns (diet, changes in appetite, etc.) | Coded | 0, 1, 2, 3, 8888, 9999 |
Formats
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| 26540 | CSC_PTE_INFO_TOPICS_PHYS | Given information on physical challenges | After completing cancer treatments, were you given enough information about each of the following topics: Physical challenges or concerns (e.g., pain, fatigue) | Coded | 0, 1, 2, 3, 8888, 9999 |
Formats
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| 26541 | CSC_PTE_INFO_TOPICS_PRAC | Given information on practical challenges | After completing cancer treatments, were you given enough information about each of the following topics: Practical challenges or concerns (e.g., financial aid) | Coded | 0, 1, 2, 3, 8888, 9999 |
Formats
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| 26542 | CSC_PTE_INFO_TOPICS_SIGN | Given information on signs of cancer returning | After completing cancer treatments, were you given enough information about each of the following topics: Signs of cancer returning | Coded | 0, 1, 2, 3, 8888, 9999 |
Formats
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| 26543 | CSC_PTE_LETTER | Received follow-up care written plan | After completing cancer treatments, did you receive a written plan or letter outlining what to expect for your follow-up care? | Coded | 0, 1, 99, 8888, 9999 |
Formats
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| 26544 | CSC_PTE_LETTER_INFO | Did plan provide all information | Did this plan or letter provide the information you needed? | Coded | 0, 1, 2, 8888, 9999 |
Formats
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| 26545 | CSC_PTE_PCP_CC | Was primary care provider informed | When you most recently saw your primary care provider, do you feel they knew enough about your cancer care? | Coded | 0, 1, 2, 8888, 9999 |
Formats
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| 26546 | CSC_PTE_PCP_CC_COORD | Satisfaction between cancer team and provider | Overall, how satisfied have you been with the coordination between the cancer care team and your primary care provider? | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26547 | CSC_PTE_PCP_CURRENT | Currently have a primary care provider | Do you currently have a primary care provider (such as a family doctor or community nurse practitioner)? | Coded | 0, 1, 8888, 9999 |
Formats
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| 26548 | CSC_PTE_PCP_DX | Primary care provider present at diagnosis | Did you have a primary care provider (such as a family doctor or community nurse practitioner) at the time of your diagnosis? | Coded | 0, 1, 8888, 9999 |
Formats
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| 26549 | CSC_PTE_PCP_TX | Primary care provide present at time of treatments | Did you have a primary care provider (such as a family doctor or community nurse practitioner) at the time you completed cancer treatments? | Coded | 0, 1, 8888, 9999 |
Formats
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| 26550 | CSC_PTE_POST_TX_CARE_SAT | Satisfication with post-treatment follow up | Overall, how satisfied have you been with your post-treatment follow-up care? | Coded | 1, 2, 3, 4, 5, 8888, 9999 |
Formats
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| 26551 | CSC_PTE_TOPICS_DISC_C1 | Topics cancer care provider discussed. Treatments you would or would not want. | Which of the following topics, if any, has a cancer care provider spoken to you about? Select all that apply. Treatments you would or would not want related to controlling your cancer | Coded | 0, 1, 8888, 9999 |
Formats
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| 26552 | CSC_PTE_TOPICS_DISC_C2 | Topics cancer care provider discussed. Your values, spiritual beliefs, or other practices that are important. | Which of the following topics, if any, has a cancer care provider spoken to you about? Select all that apply. Your values, spiritual beliefs, or other practices that are important to you as you make decisions about your health care | Coded | 0, 1, 8888, 9999 |
Formats
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| 26553 | CSC_PTE_TOPICS_DISC_C3 | Topics cancer care provider discussed. Fears and concerns. | Which of the following topics, if any, has a cancer care provider spoken to you about? Select all that apply. Your fears and concerns | Coded | 0, 1, 8888, 9999 |
Formats
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| 26554 | CSC_PTE_TOPICS_DISC_C4 | Topics cancer care provider discussed. Prognosis. | Which of the following topics, if any, has a cancer care provider spoken to you about? Select all that apply. Prognosis (life expectancy, how your illness may progress) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26555 | CSC_PTE_TOPICS_DISC_C5 | Topics cancer care provider discussed. Advance Care Planning. | Which of the following topics, if any, has a cancer care provider spoken to you about? Select all that apply. Advance Care Planning and/or Goals of Care documentation | Coded | 0, 1, 8888, 9999 |
Formats
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| 26556 | CSC_PTE_TOPICS_DISC_C6 | Topics cancer care provider discussed. Connecting with palliative care services. | Which of the following topics, if any, has a cancer care provider spoken to you about? Select all that apply. Connecting with palliative care services in the cancer program or community. | Coded | 0, 1, 8888, 9999 |
Formats
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| 26557 | CSC_PTE_TOPICS_DISC_C7 | Topics cancer care provider discussed. None of the above. | Which of the following topics, if any, has a cancer care provider spoken to you about? Select all that apply. None of the above | Coded | 0, 1, 8888, 9999 |
Formats
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| 26558 | CSC_PTE_TX_INTENT | Intent of recent treatment | What was the intent of your most recent treatment(s)? | Coded | 1, 2, 3, 99, 8888, 9999 |
Formats
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| 26559 | CSC_PTE_WAIT_TIMES_DX | Reasonable wait time for Diagnosis | To what extent do you agree that the wait times for the following steps in your care journey were reasonable? Diagnosis | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26560 | CSC_PTE_WAIT_TIMES_SPEC | Reasonable wait time for a Specialist consult | To what extent do you agree that the wait times for the following steps in your care journey were reasonable? Specialist consult | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26561 | CSC_PTE_WAIT_TIMES_TX | Reasonable wait time for Treatment | To what extent do you agree that the wait times for the following steps in your care journey were reasonable? Treatment | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26459 | O_CSC_CE_CANCER_TX_C9 | Loved one cancer treatments during your caregiving - Other (please specify): | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Other (please specify): | Text |
| Var ID | Var Name | Label | Description | Type | Valid Values | Unit | |
| 26219 | CSC_CE_ACTIVITIES_C1 | Providing support to loved one with activites. Transportation | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Transportation (e.g., errands, getting to medical appointments, getting to social events) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26220 | CSC_CE_ACTIVITIES_C10 | Providing support to loved one with activites. Interpreting or explaining medical information and details | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Interpreting or explaining medical information and details | Coded | 0, 1, 8888, 9999 |
Formats
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| 26221 | CSC_CE_ACTIVITIES_C11 | Providing support to loved one with activites. Coordinating community supports | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Coordinating community supports (with neighbours, colleagues, friends and family) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26222 | CSC_CE_ACTIVITIES_C12 | Providing support to loved one with activites. Coordinating counselling and peer supports | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Coordinating counselling and peer supports | Coded | 0, 1, 8888, 9999 |
Formats
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| 26223 | CSC_CE_ACTIVITIES_C13 | Providing support to loved one with activites. Education and expectations management with family and friends | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Education and expectations management with family and friends | Coded | 0, 1, 8888, 9999 |
Formats
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| 26224 | CSC_CE_ACTIVITIES_C14 | Providing support to loved one with activites. Some other activity | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Some other activity | Coded | 0, 1, 8888, 9999 |
Formats
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| 26225 | CSC_CE_ACTIVITIES_C15 | Providing support to loved one with activites. None of the above | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. None of the above | Coded | 0, 1, 8888, 9999 |
Formats
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| 26226 | CSC_CE_ACTIVITIES_C2 | Providing support to loved one with activites. Attending medical appointments | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Attending medical appointments | Coded | 0, 1, 8888, 9999 |
Formats
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| 26227 | CSC_CE_ACTIVITIES_C3 | Providing support to loved one with activites. Meal preparation, meal clean-up, house cleaning, or laundry | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Meal preparation, meal clean-up, house cleaning, or laundry | Coded | 0, 1, 8888, 9999 |
Formats
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| 26228 | CSC_CE_ACTIVITIES_C4 | Providing support to loved one with activites. House maintenance or outdoor work | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. House maintenance or outdoor work (e.g., house repairs, lawn maintenance, snow shovelling) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26229 | CSC_CE_ACTIVITIES_C5 | Providing support to loved one with activites. Personal care | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Personal care (e.g., bathing, dressing, feeding) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26230 | CSC_CE_ACTIVITIES_C6 | Providing support to loved one with activites. Medical treatments or procedures | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Medical treatments or procedures (e.g., changing bandages or dressings, taking medications, performing blood sugar tests) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26231 | CSC_CE_ACTIVITIES_C7 | Providing support to loved one with activites. Scheduling or coordinating care-related tasks | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Scheduling or coordinating care-related tasks (e.g., organizing care schedule, making appointments, hiring professional hel | Coded | 0, 1, 8888, 9999 |
Formats
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| 26232 | CSC_CE_ACTIVITIES_C8 | Providing support to loved one with activites. Managing their finances | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Managing their finances (e.g., banking, bill paying, managing health insurance claims) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26233 | CSC_CE_ACTIVITIES_C9 | Providing support to loved one with activites. Emotional support | When you were providing support to your loved one, did you help them with any of the following activities? Select all that apply. Emotional support (e.g., spending time with them, talking with and listening to them) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26234 | CSC_CE_CANCER_DX_C1 | Type of cancer loved one diagnosed with. Bladder | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Bladder | Coded | 0, 1, 8888, 9999 |
Formats
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| 26235 | CSC_CE_CANCER_DX_C10 | Type of cancer loved one diagnosed with. Leukemia | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Leukemia | Coded | 0, 1, 8888, 9999 |
Formats
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| 26236 | CSC_CE_CANCER_DX_C11 | Type of cancer loved one diagnosed with. Liver | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Liver | Coded | 0, 1, 8888, 9999 |
Formats
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| 26237 | CSC_CE_CANCER_DX_C12 | Type of cancer loved one diagnosed with. Lung and/or bronchus | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Lung and/or bronchus | Coded | 0, 1, 8888, 9999 |
Formats
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| 26238 | CSC_CE_CANCER_DX_C13 | Type of cancer loved one diagnosed with. Hodgkin lymphoma | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Lymphoma (hodgkin lymphoma) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26239 | CSC_CE_CANCER_DX_C14 | Type of cancer loved one diagnosed with. Non-hodgkin lymphoma | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Lymphoma (non-hodgkin lymphoma) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26240 | CSC_CE_CANCER_DX_C15 | Type of cancer loved one diagnosed with. Mouth, tongue, and/or throat | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Mouth, tongue, and/or throat | Coded | 0, 1, 8888, 9999 |
Formats
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| 26241 | CSC_CE_CANCER_DX_C16 | Type of cancer loved one diagnosed with. Multiple myeloma | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Multiple myeloma | Coded | 0, 1, 8888, 9999 |
Formats
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| 26242 | CSC_CE_CANCER_DX_C17 | Type of cancer loved one diagnosed with. Ovary | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Ovary | Coded | 0, 1, 8888, 9999 |
Formats
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| 26243 | CSC_CE_CANCER_DX_C18 | Type of cancer loved one diagnosed with. Pancreas | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Pancreas | Coded | 0, 1, 8888, 9999 |
Formats
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| 26244 | CSC_CE_CANCER_DX_C19 | Type of cancer loved one diagnosed with. Prostate | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Prostate | Coded | 0, 1, 8888, 9999 |
Formats
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| 26245 | CSC_CE_CANCER_DX_C2 | Type of cancer loved one diagnosed with. Bone | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Bone (osteosarcoma and other sarcomas) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26246 | CSC_CE_CANCER_DX_C20 | Type of cancer loved one diagnosed with. Rectum | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Rectum | Coded | 0, 1, 8888, 9999 |
Formats
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| 26247 | CSC_CE_CANCER_DX_C21 | Type of cancer loved one diagnosed with. Skin (melanoma) | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Skin (melanoma) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26248 | CSC_CE_CANCER_DX_C22 | Type of cancer loved one diagnosed with. Skin (non-melanoma) | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Skin (non-melanoma) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26249 | CSC_CE_CANCER_DX_C23 | Type of cancer loved one diagnosed with. Small intestine | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Small intestine | Coded | 0, 1, 8888, 9999 |
Formats
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| 26250 | CSC_CE_CANCER_DX_C24 | Type of cancer loved one diagnosed with. Stomach | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Stomach | Coded | 0, 1, 8888, 9999 |
Formats
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| 26251 | CSC_CE_CANCER_DX_C25 | Type of cancer loved one diagnosed with. Testicle | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Testicle | Coded | 0, 1, 8888, 9999 |
Formats
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| 26252 | CSC_CE_CANCER_DX_C26 | Type of cancer loved one diagnosed with. Thyroid | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Thyroid | Coded | 0, 1, 8888, 9999 |
Formats
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| 26253 | CSC_CE_CANCER_DX_C27 | Type of cancer loved one diagnosed with. Uterus | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Uterus | Coded | 0, 1, 8888, 9999 |
Formats
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| 26254 | CSC_CE_CANCER_DX_C28 | Type of cancer loved one diagnosed with. Other | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Other | Coded | 0, 1, 8888, 9999 |
Formats
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| 26255 | CSC_CE_CANCER_DX_C29 | Type of cancer loved one diagnosed with. Don't know | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Don't know | Coded | 0, 1, 8888, 9999 |
Formats
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| 26256 | CSC_CE_CANCER_DX_C3 | Type of cancer loved one diagnosed with. Brain | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Brain | Coded | 0, 1, 8888, 9999 |
Formats
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| 26257 | CSC_CE_CANCER_DX_C4 | Type of cancer loved one diagnosed with. Breast | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Breast | Coded | 0, 1, 8888, 9999 |
Formats
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| 26258 | CSC_CE_CANCER_DX_C5 | Type of cancer loved one diagnosed with. Cervix | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Cervix | Coded | 0, 1, 8888, 9999 |
Formats
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| 26259 | CSC_CE_CANCER_DX_C6 | Type of cancer loved one diagnosed with. Colon | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Colon | Coded | 0, 1, 8888, 9999 |
Formats
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| 26260 | CSC_CE_CANCER_DX_C7 | Type of cancer loved one diagnosed with. Esophagus | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Esophagus | Coded | 0, 1, 8888, 9999 |
Formats
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| 26261 | CSC_CE_CANCER_DX_C8 | Type of cancer loved one diagnosed with. Kidney | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Kidney | Coded | 0, 1, 8888, 9999 |
Formats
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| 26262 | CSC_CE_CANCER_DX_C9 | Type of cancer loved one diagnosed with. Larynx | What type(s) of cancer was your loved one diagnosed with, during the time you were providing caregiving support? Select all that apply. Larynx | Coded | 0, 1, 8888, 9999 |
Formats
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| 26263 | CSC_CE_CANCER_TX_C1 | Loved one cancer treatments during your caregiving - Chemotherapy | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Chemotherapy | Coded | 0, 1, 8888, 9999 |
Formats
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| 26264 | CSC_CE_CANCER_TX_C10 | Loved one cancer treatments during your caregiving - My loved one did not receive treatment | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? My loved one did not receive treatment | Coded | 0, 1, 8888, 9999 |
Formats
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| 26265 | CSC_CE_CANCER_TX_C11 | Loved one cancer treatments during your caregiving - Don’t know | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Don’t know | Coded | 0, 1, 8888, 9999 |
Formats
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| 26266 | CSC_CE_CANCER_TX_C2 | Loved one cancer treatments during your caregiving - Oral medications to treat their cancer | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Oral medications to treat their cancer | Coded | 0, 1, 8888, 9999 |
Formats
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| 26267 | CSC_CE_CANCER_TX_C3 | Loved one cancer treatments during your caregiving - Radiation | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Radiation | Coded | 0, 1, 8888, 9999 |
Formats
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| 26268 | CSC_CE_CANCER_TX_C4 | Loved one cancer treatments during your caregiving - Surgery | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Surgery | Coded | 0, 1, 8888, 9999 |
Formats
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| 26269 | CSC_CE_CANCER_TX_C5 | Loved one cancer treatments during your caregiving - Laser therapy | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Laser therapy | Coded | 0, 1, 8888, 9999 |
Formats
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| 26270 | CSC_CE_CANCER_TX_C6 | Loved one cancer treatments during your caregiving - Stem cell therapy | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Stem cell therapy | Coded | 0, 1, 8888, 9999 |
Formats
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| 26271 | CSC_CE_CANCER_TX_C7 | Loved one cancer treatments during your caregiving - Immunotherapy | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Immunotherapy | Coded | 0, 1, 8888, 9999 |
Formats
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| 26272 | CSC_CE_CANCER_TX_C8 | Loved one cancer treatments during your caregiving - Hormone therapy (including Tamoxifen) | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Hormone therapy (including Tamoxifen) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26273 | CSC_CE_CANCER_TX_C9 | Loved one cancer treatments during your caregiving - Other (please specify): | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Other (please specify): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26274 | CSC_CE_CAREGIVER | Caregiver for loved one with cancer | Do you identify as a primary caregiver for a loved one with a cancer diagnosis? If you have been a primary caregiver for multiple loved ones, please think about your most recent caregiver experience.? | Coded | 0, 1, 8888, 9999 |
Formats
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| 26283 | CSC_CE_DX_PROV | Loved one diagnosed in Alberta or elsewhere | Was your loved one diagnosed in Alberta or elsewhere? | Coded | 1-14, 99, 8888, 9999 |
Formats
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| 26284 | CSC_CE_IMPACT_DIET | Impact of caregiving on diet/nutrition | Please assess the impact of your caregiving activities on your: Diet/nutrition | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26285 | CSC_CE_IMPACT_EMOTION | Impact of caregiving on emotional health | Please assess the impact of your caregiving activities on your: Emotional health | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26286 | CSC_CE_IMPACT_FAMILY | Impact of caregiving on family life | Please assess the impact of your caregiving activities on your: Family life | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26287 | CSC_CE_IMPACT_FINANCES | Impact of caregiving on finances | Please assess the impact of your caregiving activities on your: Finances | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26288 | CSC_CE_IMPACT_OTHER | Impact of caregiving on other lifestyle | Please assess the impact of your caregiving activities on your: Other lifestyle (e.g., physical activity, sleep) | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26289 | CSC_CE_IMPACT_PERSONAL | Impact of caregiving on personal activites | Please assess the impact of your caregiving activities on your: Personal activities and/or self-care | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26295 | CSC_CE_IMPACT_PHYSICAL | Impact of caregiving on physical health | Please assess the impact of your caregiving activities on your: Physical health | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26296 | CSC_CE_IMPACT_PROF | Impact of caregiving on professional life | Please assess the impact of your caregiving activities on your: Professional life | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26297 | CSC_CE_IMPACT_REL | Impact of caregiving on relationship with loved one | Please assess the impact of your caregiving activities on your: Relationship with the loved one | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26298 | CSC_CE_IMPACT_SOCIAL | Impact of caregiving on social life | Please assess the impact of your caregiving activities on your: Social life | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26299 | CSC_CE_INFO_TOPICS_COMM | Were you and loved one given information for community resources | After completing cancer treatments, were you and your loved one given enough information about each of the following topics: Community resources | Coded | 0, 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26300 | CSC_CE_INFO_TOPICS_EMOT | Were you and loved one given information for emotional challenges | After completing cancer treatments, were you and your loved one given enough information about each of the following topics: Emotional challenges or concerns (e.g., depression, anxiety) | Coded | 0, 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26301 | CSC_CE_INFO_TOPICS_LIFE | Were you and loved one given information for lifestyle challenges | After completing cancer treatments, were you and your loved one given enough information about each of the following topics: Other lifestyle challenges or concerns (e.g., physical activity, sleep) | Coded | 0, 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26302 | CSC_CE_INFO_TOPICS_NUT | Were you and loved one given information for nutritional concerns | After completing cancer treatments, were you and your loved one given enough information about each of the following topics: Nutritional concerns (diet, changes in appetite, etc.) | Coded | 0, 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26303 | CSC_CE_INFO_TOPICS_PHYS | Were you and loved one given information for physical challenges | After completing cancer treatments, were you and your loved one given enough information about each of the following topics: Physical challenges or concerns (e.g., pain, fatigue) | Coded | 0, 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26304 | CSC_CE_INFO_TOPICS_PRAC | Were you and loved one given information for practical challenges | After completing cancer treatments, were you and your loved one given enough information about each of the following topics: Practical challenges or concerns (e.g., financial aid) | Coded | 0, 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26305 | CSC_CE_INFO_TOPICS_SIGN | Were you and loved one given information for signs of cancer returning | After completing cancer treatments, were you and your loved one given enough information about each of the following topics: Signs of cancer returning | Coded | 0, 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26306 | CSC_CE_LETTER | Did loved one receive written follow-up care plan | After completing cancer treatments, did your loved one receive a written plan or letter outlining what to expect for their follow-up care? | Coded | 0, 1, 2, 99, 8888, 9999 |
Formats
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| 26307 | CSC_CE_LETTER_INFO | Did this plan provide information needed | Did this plan or letter provide the information you and your loved one needed? | Coded | 0, 1, 2, 8888, 9999 |
Formats
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| 26308 | CSC_CE_LOVED_ONE | Describe your loved one | Which of the following best describes your loved one with a cancer diagnosis? | Coded | 1, 2, 3, 8888, 9999 |
Formats
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| 26309 | CSC_CE_LOVED_ONE_MOST_REC | Relationship to loved one | Who was the loved one you supported? (Please choose one option.) Again, if you have been a primary caregiver for multiple loved ones, please think about your most recent caregiver experience.? | Coded | 1-13, 8888, 9999 |
Formats
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| 26310 | CSC_CE_PCP_CC | Did provider know enough about loved one's treatment | When your loved one most recently saw their primary care provider, do you feel the provider knew enough about their cancer? | Coded | 0, 1, 2, 99, 8888, 9999 |
Formats
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| 26311 | CSC_CE_PCP_CC_COORD | Satisfication between cancer team and loved one's provider | Overall, how satisfied have you been with the coordination between the cancer care team and your loved one’s primary care provider? | Coded | 1, 2, 3, 4, 5, 6, 99, 8888, 9999 |
Formats
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| 26312 | CSC_CE_PCP_CURRENT | Does loved one currently have a primary care provider | Does your loved one currently have a primary care provider (such as a family doctor or community nurse practitioner)? | Coded | 0, 1, 99, 8888, 9999 |
Formats
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| 26313 | CSC_CE_PCP_DX | Did loved one have a primary care provider at diagnosis | Did your loved one have a primary care provider (such as a family doctor or community nurse practitioner) at the time of their diagnosis? | Coded | 0, 1, 99, 8888, 9999 |
Formats
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| 26314 | CSC_CE_PCP_TX | Did loved one have a primary care provider at treatments | Did your loved one have a primary care provider (such as a family doctor or community nurse practitioner) at the time they completed cancer treatments? | Coded | 0, 1, 2, 99, 8888, 9999 |
Formats
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| 26315 | CSC_CE_POST_TX_CARE_SAT | Satisfication with post-treatment follow up for loved one | Overall, how satisfied have you been/were you with your loved one’s post-treatment follow-up care? | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26316 | CSC_CE_SUPPORT_DIET | Caregiver supports and resources for diet/nutrition | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Diet/nutrition | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26317 | CSC_CE_SUPPORT_EMOTION | Caregiver supports and resources for emotional health | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Emotional health | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26318 | CSC_CE_SUPPORT_FAMILY | Caregiver supports and resources for family life | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Family life | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26319 | CSC_CE_SUPPORT_FINANCES | Caregiver supports and resources for finances | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Finances | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26320 | CSC_CE_SUPPORT_LIFE | Caregiver supports and resources for other lifestyle | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Other lifestyle (e.g., physical activity, sleep) | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26321 | CSC_CE_SUPPORT_OTH | Caregiver supports and resources for other | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Other | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26322 | CSC_CE_SUPPORT_PERSONAL | Caregiver supports and resources for personal activities | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Personal activities and/or self-care | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26323 | CSC_CE_SUPPORT_PHYSICAL | Caregiver supports and resources for physical health | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Physical health | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26324 | CSC_CE_SUPPORT_PROF | Caregiver supports and resources for professional life | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Professional life | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26325 | CSC_CE_SUPPORT_REL | Caregiver supports and resources for relationship with loved one | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Relationship with the loved one | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26326 | CSC_CE_SUPPORT_SOCIAL | Caregiver supports and resources for social life | Have you been provided with information about caregiver supports and resources in the community, for the following topics? Social life | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26327 | CSC_CE_TOPICS_DISC_C1 | Topics cancer care provider discussed for loved one - Treatments | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? Treatments they would or would not want related to controlling their cancer | Coded | 0, 1, 8888, 9999 |
Formats
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| 26328 | CSC_CE_TOPICS_DISC_C2 | Topics cancer care provider discussed for loved one - Their values, spiritual beliefs, or other practices | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? Their values, spiritual beliefs, or other practices that are important to them as they make decisions about their health care | Coded | 0, 1, 8888, 9999 |
Formats
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| 26329 | CSC_CE_TOPICS_DISC_C3 | Topics cancer care provider discussed for loved one - Their fears and concerns | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? Their fears and concerns | Coded | 0, 1, 8888, 9999 |
Formats
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| 26330 | CSC_CE_TOPICS_DISC_C4 | Topics cancer care provider discussed for loved one - Prognosis | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? Prognosis (life expectancy, how their illness may progress) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26334 | CSC_CE_TOPICS_DISC_C5 | Topics cancer care provider discussed for loved one - Advance Care Planning | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? Advance Care Planning and/or Goals of Care documentation | Coded | 0, 1, 8888, 9999 |
Formats
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| 26335 | CSC_CE_TOPICS_DISC_C6 | Topics cancer care provider discussed for loved one - Connecting with palliative care services | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? Connecting with palliative care services in the cancer program or community | Coded | 0, 1, 8888, 9999 |
Formats
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| 26336 | CSC_CE_TOPICS_DISC_C7 | Topics cancer care provider discussed for loved one - None of the above | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? None of the above | Coded | 0, 1, 8888, 9999 |
Formats
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| 26337 | CSC_CE_TOPICS_DISC_C8 | Topics cancer care provider discussed for loved one - I do not know if these conversations took place | Which of the following topics, if any, has a cancer care provider spoken to your loved one about? I do not know if these conversations took place | Coded | 0, 1, 8888, 9999 |
Formats
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| 26338 | CSC_CE_TX_INTENT | Intent of recent treatment by loved one | What was the intent of your loved one’s most recent treatment(s)? | Coded | 1, 2, 3, 99, 8888, 9999 |
Formats
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| 26339 | CSC_CE_TX_PROV_C1 | Loved one treated in Alberta or elsewhere Alberta | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Alberta | Coded | 0, 1, 8888, 9999 |
Formats
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| 26340 | CSC_CE_TX_PROV_C10 | Loved one treated in Alberta or elsewhere Prince Edward Island | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Prince Edward Island | Coded | 0, 1, 8888, 9999 |
Formats
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| 26341 | CSC_CE_TX_PROV_C11 | Loved one treated in Alberta or elsewhere Quebec | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Quebec | Coded | 0, 1, 8888, 9999 |
Formats
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| 26342 | CSC_CE_TX_PROV_C12 | Loved one treated in Alberta or elsewhere Saskatchewan | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Saskatchewan | Coded | 0, 1, 8888, 9999 |
Formats
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| 26343 | CSC_CE_TX_PROV_C13 | Loved one treated in Alberta or elsewhere Yukon | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Yukon | Coded | 0, 1, 8888, 9999 |
Formats
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| 26344 | CSC_CE_TX_PROV_C14 | Loved one treated in Alberta or elsewhere Outside of Canada | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Outside of Canada | Coded | 0, 1, 8888, 9999 |
Formats
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| 26345 | CSC_CE_TX_PROV_C2 | Loved one treated in Alberta or elsewhere British Columbia | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. British Columbia | Coded | 0, 1, 8888, 9999 |
Formats
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| 26346 | CSC_CE_TX_PROV_C3 | Loved one treated in Alberta or elsewhere Manitoba | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Manitoba | Coded | 0, 1, 8888, 9999 |
Formats
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| 26347 | CSC_CE_TX_PROV_C4 | Loved one treated in Alberta or elsewhere New Brunswick | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. New Brunswick | Coded | 0, 1, 8888, 9999 |
Formats
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| 26348 | CSC_CE_TX_PROV_C5 | Loved one treated in Alberta or elsewhere Newfoundland and Labrador | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Newfoundland and Labrador | Coded | 0, 1, 8888, 9999 |
Formats
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| 26349 | CSC_CE_TX_PROV_C6 | Loved one treated in Alberta or elsewhere Northwest Territories | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Northwest Territories | Coded | 0, 1, 8888, 9999 |
Formats
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| 26350 | CSC_CE_TX_PROV_C7 | Loved one treated in Alberta or elsewhere Nova Scotia | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Nova Scotia | Coded | 0, 1, 8888, 9999 |
Formats
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| 26351 | CSC_CE_TX_PROV_C8 | Loved one treated in Alberta or elsewhere Nunavut | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Nunavut | Coded | 0, 1, 8888, 9999 |
Formats
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| 26352 | CSC_CE_TX_PROV_C9 | Loved one treated in Alberta or elsewhere Ontario | Was your loved one treated (or is your loved one receiving treatment) in Alberta or elsewhere? Select all that apply. Ontario | Coded | 0, 1, 8888, 9999 |
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| 26353 | CSC_CE_TX_STATEMENT | Type of cancer treatment for loved one | Which of the following statements best describes your loved one’s cancer treatment(s)? (Treatment includes surgery, radiation, chemo- or immunotherapy, oral medications, hormone therapy, and laser or stem cell therapy.) | Coded | 1, 2, 99, 8888, 9999 |
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| 26354 | CSC_CE_TX_YEAR | When loved one completed treatment | When did your loved one complete treatment? Please select the year if you’re not sure, use your best estimate. Year: | Coded | 1939-2025, 8888, 9999 | Year |
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| 26355 | CSC_CE_TX_YEAR_CA | When loved one completed treatment | When did your loved one complete treatment? Please select the year if you’re not sure, use your best estimate. Year: | Coded | 99, 8888, 9999 |
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| 26356 | CSC_CE_WAIT_TIMES_DX | Reasonable wait times for loved one for diagnosis | To what extent do you agree that the wait times for the following steps in your loved one’s care journey were reasonable? Diagnosis | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
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| 26357 | CSC_CE_WAIT_TIMES_SPEC | Reasonable wait times for loved one for specialist consult | To what extent do you agree that the wait times for the following steps in your loved one’s care journey were reasonable? Specialist consult | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
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| 26358 | CSC_CE_WAIT_TIMES_TX | Reasonable wait times for loved one for treatment | To what extent do you agree that the wait times for the following steps in your loved one’s care journey were reasonable? Treatment | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
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| 26450 | CSC_OTSP | Additional Comments | Is there anything else you would like to tell us about related to these topics? (Feel free to tell us whatever you’d like, but please refrain from including any information that could be identifying, such as names, specific locations, etc.). | Text | |||
| 26359 | CSC_PE_CAREGIVER_CHILDREN | While being a caregiver, did children under 18 live with you? | Earlier, you stated you were a caregiver for your [CSC_CE_LOVED_ONE_MOST_REC]. When you were a caregiver for this person, did you have children under 18 years of age living with you? | Coded | 0, 1, 88, 8888, 9999 |
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| 26360 | CSC_PE_CG_CHILD_SUP_REC_COMM_C1 | Information from cancer program about accessing supports for children. I received information about local cancer communities | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26361 | CSC_PE_CG_CHILD_SUP_REC_COMM_C2 | Information from cancer program about accessing supports for children. I wanted information about local cancer communities but did not receive it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). I wanted information about this service b | Coded | 0, 1, 8888, 9999 |
Formats
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| 26362 | CSC_PE_CG_CHILD_SUP_REC_COMM_C3 | Information from cancer program about accessing supports for children. I did not receive information about local cancer communities but did not need it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). I did not receive information about this | Coded | 0, 1, 8888, 9999 |
Formats
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| 26363 | CSC_PE_CG_CHILD_SUP_REC_COMM_C4 | Information from cancer program about accessing supports for children. Local cancer communities - unsure or can't remember | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26364 | CSC_PE_CG_CHILD_SUP_REC_COUN_C1 | Information from cancer program about accessing supports for children. I received information about counselling | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26365 | CSC_PE_CG_CHILD_SUP_REC_COUN_C2 | Information from cancer program about accessing supports for children. I wanted information about counselling but did not receive it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). I wanted information about this service but did not rec | Coded | 0, 1, 8888, 9999 |
Formats
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| 26366 | CSC_PE_CG_CHILD_SUP_REC_COUN_C3 | Information from cancer program about accessing supports for children. I did not receive information about counselling but did not need it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). I did not receive information about this service but di | Coded | 0, 1, 8888, 9999 |
Formats
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| 26367 | CSC_PE_CG_CHILD_SUP_REC_COUN_C4 | Information from cancer program about accessing supports for children. Counselling - unsure or can't remember | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26368 | CSC_PE_CG_CHILD_SUP_REC_MED_C1 | Information from cancer program about accessing supports for children. I received information about psychiatric support | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26372 | CSC_PE_CG_CHILD_SUP_REC_MED_C2 | Information from cancer program about accessing supports for children. I wanted information about psychiatric support but did not receive it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). I wanted information about this service but did not receive it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26373 | CSC_PE_CG_CHILD_SUP_REC_MED_C3 | Information from cancer program about accessing supports for children. I did not receive information about psychiatric support but did not need it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). I did not receive information about this service but did not ne | Coded | 0, 1, 8888, 9999 |
Formats
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| 26379 | CSC_PE_CG_CHILD_SUP_REC_MED_C4 | Information from cancer program about accessing supports for children. Psychiatric support - unsure or can't remember | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26380 | CSC_PE_CG_CHILD_SUP_REC_ONLINE_C1 | Information from cancer program about accessing supports for children. I received information about online cancer communities | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26381 | CSC_PE_CG_CHILD_SUP_REC_ONLINE_C2 | Information from cancer program about accessing supports for children. I wanted information about online cancer communities but did not receive it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. I wanted information about this service but did not receive it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26382 | CSC_PE_CG_CHILD_SUP_REC_ONLINE_C3 | Information from cancer program about accessing supports for children. I did not receive information about online cancer communities but did not need it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. I did not receive information about this service but did not need it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26383 | CSC_PE_CG_CHILD_SUP_REC_ONLINE_C4 | Information from cancer program about accessing supports for children. online cancer communities - unsure or can't remember | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26384 | CSC_PE_CG_CHILD_SUP_REC_OTH1_C1 | Information from cancer program about accessing supports for children. I received information about this other service | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26385 | CSC_PE_CG_CHILD_SUP_REC_OTH1_C2 | Information from cancer program about accessing supports for children. I wanted information about this other service but did not receive it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26386 | CSC_PE_CG_CHILD_SUP_REC_OTH1_C3 | Information from cancer program about accessing supports for children. I did not receive information about this other service but did not need it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26387 | CSC_PE_CG_CHILD_SUP_REC_OTH1_C4 | Information from cancer program about accessing supports for children. Other - unsure or can’t remember | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26388 | CSC_PE_CG_CHILD_SUP_REC_OTH2_C1 | Information from cancer program about accessing supports for children. I received information about this other service | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26389 | CSC_PE_CG_CHILD_SUP_REC_OTH2_C2 | Information from cancer program about accessing supports for children. I wanted information about this other service but did not receive it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26390 | CSC_PE_CG_CHILD_SUP_REC_OTH2_C3 | Information from cancer program about accessing supports for children. I did not receive information about this other service but did not need it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26391 | CSC_PE_CG_CHILD_SUP_REC_OTH2_C4 | Information from cancer program about accessing supports for children. Other - unsure or can’t remember | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26392 | CSC_PE_CG_CHILD_SUP_REC_OTH3_C1 | Information from cancer program about accessing supports for children. I received information about this other service | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26393 | CSC_PE_CG_CHILD_SUP_REC_OTH3_C2 | Information from cancer program about accessing supports for children. I wanted information about this other service but did not receive it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26394 | CSC_PE_CG_CHILD_SUP_REC_OTH3_C3 | Information from cancer program about accessing supports for children. I did not receive information about this other service but did not need it | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26395 | CSC_PE_CG_CHILD_SUP_REC_OTH3_C4 | Information from cancer program about accessing supports for children. Other - unsure or can’t remember | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 0, 1, 8888, 9999 |
Formats
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| 26411 | CSC_PE_CG_CHILD_SUP_REC_OTSP1 | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26396 | CSC_PE_CG_CHILD_SUP_REC_OTSP1_CA | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
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| 26412 | CSC_PE_CG_CHILD_SUP_REC_OTSP2 | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26397 | CSC_PE_CG_CHILD_SUP_REC_OTSP2_CA | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
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| 26413 | CSC_PE_CG_CHILD_SUP_REC_OTSP3 | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26398 | CSC_PE_CG_CHILD_SUP_REC_OTSP3_CA | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best describes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
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| 26399 | CSC_PE_CG_CHILD_SUP_USED_COMM_C1 | Supports used by your children. My children accessed local cancer communities | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26400 | CSC_PE_CG_CHILD_SUP_USED_COMM_C2 | Supports used by your children. My children did not access local cancer communities but would've benefitted from it | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26401 | CSC_PE_CG_CHILD_SUP_USED_COMM_C3 | Supports used by your children. My children did nto access local cancer communities and did not need to | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
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| 26402 | CSC_PE_CG_CHILD_SUP_USED_COMM_C4 | Supports used by your children. Local cancer communities - unsure or can't remember | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26403 | CSC_PE_CG_CHILD_SUP_USED_COUN_C1 | Supports used by your children. My children accessed counselling | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26404 | CSC_PE_CG_CHILD_SUP_USED_COUN_C2 | Supports used by your children. My children did not access counselling but would've benefitted from it | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26405 | CSC_PE_CG_CHILD_SUP_USED_COUN_C3 | Supports used by your children. My children did not access counselling and did not need to | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
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| 26406 | CSC_PE_CG_CHILD_SUP_USED_COUN_C4 | Supports used by your children. Counselling - unsure or can't remember | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26407 | CSC_PE_CG_CHILD_SUP_USED_MED_C1 | Supports used by your children. My children accessed psychiatric support | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26408 | CSC_PE_CG_CHILD_SUP_USED_MED_C2 | Supports used by your children. My children did not access psychiatric support but would've benefitted from it | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26409 | CSC_PE_CG_CHILD_SUP_USED_MED_C3 | Supports used by your children. My children did not access psychiatric support and did not need to | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
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| 26410 | CSC_PE_CG_CHILD_SUP_USED_MED_C4 | Supports used by your children. Psychiatric support - unsure or can't remember | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26414 | CSC_PE_CG_CHILD_SUP_USED_ONLINE_C1 | Supports used by your children. My children accessed online cancer communities | Which of the following best describes the supports your child/children used? Online cancer communities. My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26415 | CSC_PE_CG_CHILD_SUP_USED_ONLINE_C2 | Supports used by your children. My children did not access online cancer communities but woud've benefitted from it | Which of the following best describes the supports your child/children used? Online cancer communities. My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26416 | CSC_PE_CG_CHILD_SUP_USED_ONLINE_C3 | Supports used by your children. My children did not access online cancer communities and did nto need to | Which of the following best describes the supports your child/children used? Online cancer communities. My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
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| 26417 | CSC_PE_CG_CHILD_SUP_USED_ONLINE_C4 | Supports used by your children. Online cancer communities - unsure or can't remember | Which of the following best describes the supports your child/children used? Online cancer communities. Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26418 | CSC_PE_CG_CHILD_SUP_USED_OTH1_C1 | Supports used by your children. My children did not access this other service | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26419 | CSC_PE_CG_CHILD_SUP_USED_OTH1_C2 | Supports used by your children. My children did not access this other service but would've benefitted from it | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26420 | CSC_PE_CG_CHILD_SUP_USED_OTH1_C3 | Supports used by your children. My children did not access this other service and did not need to | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
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| 26421 | CSC_PE_CG_CHILD_SUP_USED_OTH1_C4 | Supports used by your children. Other service - unsure or can't remember | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26422 | CSC_PE_CG_CHILD_SUP_USED_OTH2_C1 | Supports used by your children. My children did not access this other service | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26423 | CSC_PE_CG_CHILD_SUP_USED_OTH2_C2 | Supports used by your children. My children did not access this other service but would've benefitted from it | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26424 | CSC_PE_CG_CHILD_SUP_USED_OTH2_C3 | Supports used by your children. My children did not access this other service and did not need to | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
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| 26425 | CSC_PE_CG_CHILD_SUP_USED_OTH2_C4 | Supports used by your children. Other service - unsure or can't remember | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26426 | CSC_PE_CG_CHILD_SUP_USED_OTH3_C1 | Supports used by your children. My children did not access this other service | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
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| 26427 | CSC_PE_CG_CHILD_SUP_USED_OTH3_C2 | Supports used by your children. My children did not access this other service but would've benefitted from it | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
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| 26428 | CSC_PE_CG_CHILD_SUP_USED_OTH3_C3 | Supports used by your children. My children did not access this other service and did not need to | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
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| 26429 | CSC_PE_CG_CHILD_SUP_USED_OTH3_C4 | Supports used by your children. Other service - unsure or can't remember | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
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| 26446 | CSC_PE_CG_CHILD_SUP_USED_OTSP1 | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Text | |||
| 26430 | CSC_PE_CG_CHILD_SUP_USED_OTSP1_CA | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
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| 26447 | CSC_PE_CG_CHILD_SUP_USED_OTSP2 | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Text | |||
| 26431 | CSC_PE_CG_CHILD_SUP_USED_OTSP2_CA | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
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| 26448 | CSC_PE_CG_CHILD_SUP_USED_OTSP3 | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Text | |||
| 26432 | CSC_PE_CG_CHILD_SUP_USED_OTSP3_CA | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
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| 26433 | CSC_PE_CG_CHILDREN_EXPLAIN | Ability to communicate loved one's cancer diagnosis to children | Using the information provided by the cancer program, do you feel you were able to effectively explain your loved one’s cancer diagnosis to your children? | Coded | 0, 1, 2, 8888, 9999 |
Formats
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| 26434 | CSC_PE_CG_SUPPORT_VIRTUAL | Preference for in-person or virtual supports | Would you have preferred in-person or virtual supports? | Coded | 1, 2, 3, 4, 8888, 9999 |
Formats
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| 26435 | CSC_PE_CHILDREN | Children under 18 living with you when diagnosed | When you were diagnosed with cancer, did you have children under 18 years of age living with you? | Coded | 0, 1, 88, 8888, 9999 |
Formats
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| 26290 | CSC_PE_CHILDREN_0_2_NUM | Number of children between 0-2 | How many children between the ages of 0 and 2? | Unk | Children | ||
| 26293 | CSC_PE_CHILDREN_10_14_NUM | Number of children between 10-14 | How many children between the ages of 10 and 14? | Unk | Children | ||
| 26294 | CSC_PE_CHILDREN_15_17_NUM | Number of children between 15-17 | How many children between the ages of 15 and 17? | Unk | Children | ||
| 26291 | CSC_PE_CHILDREN_3_5_NUM | Number of children between 3-5 | How many children between the ages of 3 and 5? | Unk | Children | ||
| 26292 | CSC_PE_CHILDREN_6_9_NUM | Number of children between 6-9 | How many children between the ages of 6 and 9? | Unk | Children | ||
| 26464 | CSC_PE_CHILDREN_DETAILS_OTSP | Additional comments about support child received | If you are comfortable, please provide more details for your child (or each of your children) about supports they received, including the age at which the support was utilized. Feel free to tell us whatever you’d like, but please refrain from including an | Text | |||
| 26469 | CSC_PE_CHILDREN_DETAILS_OTSP2 | Additional comments about support child received | If you are comfortable, please provide more details for your child (or each of your children) about supports they received, including the age at which the support was utilized. Feel free to tell us whatever you’d like, but please refrain from including an | Text | |||
| 26374 | CSC_PE_CHILDREN_DX_0_2_NUM | Number of children 0-2 | How many children between the ages of 0 and 2? | Unk | Children | ||
| 26377 | CSC_PE_CHILDREN_DX_10_14_NUM | Number of children 10-14 | How many children between the ages of 10 and 14? | Unk | Children | ||
| 26378 | CSC_PE_CHILDREN_DX_15_17_NUM | Number of children 15-17 | How many children between the ages of 15 and 17? | Unk | Children | ||
| 26375 | CSC_PE_CHILDREN_DX_3_5_NUM | Number of children 3-5 | How many children between the ages of 3 and 5? | Unk | Children | ||
| 26376 | CSC_PE_CHILDREN_DX_6_9_NUM | Number of children 6-9 | How many children between the ages of 6 and 9? | Unk | Children | ||
| 26436 | CSC_PE_CHILDREN_EXPLAIN | Ability to communicate cancer diagnosis to children | Using the information provided by the cancer program, do you feel you were able to effectively explain your cancer diagnosis to your children? | Coded | 0, 1, 2, 8888, 9999 |
Formats
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|
| 26437 | CSC_PE_CHILDREN_GROUP_C1 | Number of children you had during cancer diagnosis. 0-2 years. | How many children did you have at the time of your cancer diagnosis and in which age groups? 0-2 years of age | Coded | 0, 1, 8888, 9999 |
Formats
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|
| 26438 | CSC_PE_CHILDREN_GROUP_C2 | Number of children you had during cancer diagnosis. 3-5 years. | How many children did you have at the time of your cancer diagnosis and in which age groups? 3-5 years of age | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26439 | CSC_PE_CHILDREN_GROUP_C3 | Number of children you had during cancer diagnosis. 6-9 years. | How many children did you have at the time of your cancer diagnosis and in which age groups? 6-9 years of age | Coded | 0, 1, 8888, 9999 |
Formats
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|
| 26440 | CSC_PE_CHILDREN_GROUP_C4 | Number of children you had during cancer diagnosis. 10-14 years. | How many children did you have at the time of your cancer diagnosis and in which age groups? 10-14 years of age | Coded | 0, 1, 8888, 9999 |
Formats
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|
| 26441 | CSC_PE_CHILDREN_GROUP_C5 | Number of children you had during cancer diagnosis. 15-17 years. | How many children did you have at the time of your cancer diagnosis and in which age groups? 15-17 years of age | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26442 | CSC_PE_CHILDREN_GROUP_DX_C1 | Number of children you had during cancer diagnosis of loved one. 0-2 years. | How many children did you have at the time of your loved one’s diagnosis and in which age groups? 0-2 years of age | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26443 | CSC_PE_CHILDREN_GROUP_DX_C2 | Number of children you had during cancer diagnosis of loved one. 3-5 years. | How many children did you have at the time of your loved one’s diagnosis and in which age groups? 3-5 years of age | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26444 | CSC_PE_CHILDREN_GROUP_DX_C3 | Number of children you had during cancer diagnosis of loved one. 6-9 years. | How many children did you have at the time of your loved one’s diagnosis and in which age groups? 6-9 years of age | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26445 | CSC_PE_CHILDREN_GROUP_DX_C4 | Number of children you had during cancer diagnosis of loved one. 10-14 years. | How many children did you have at the time of your loved one’s diagnosis and in which age groups? 10-14 years of age | Coded | 0, 1, 8888, 9999 |
Formats
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|
| 26449 | CSC_PE_CHILDREN_GROUP_DX_C5 | Number of children you had during cancer diagnosis of loved one. 15-17 years. | How many children did you have at the time of your loved one’s diagnosis and in which age groups? 15-17 years of age | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26451 | CSC_PE_CHILDREN_SUPPORT_COMM_C1 | Information from cancer program about accessing supports for children. I received information about local cancer communities | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). I received information about this ser | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26452 | CSC_PE_CHILDREN_SUPPORT_COMM_C2 | Information from cancer program about accessing supports for children. I wanted information about local cancer communities but did not receive it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). I wanted information about this servi | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26453 | CSC_PE_CHILDREN_SUPPORT_COMM_C3 | Information from cancer program about accessing supports for children. I did not receive information about local cancer communities but did not need it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). I did not receive information about t | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26454 | CSC_PE_CHILDREN_SUPPORT_COMM_C4 | Information from cancer program about accessing supports for children. Local cancer communities - unsure or can't remember | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Local cancer communities (e.g., Wellspring, Kids Cancer Care). Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26455 | CSC_PE_CHILDREN_SUPPORT_COUN_C1 | Information from cancer program about accessing supports for children. I received information about counselling | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26456 | CSC_PE_CHILDREN_SUPPORT_COUN_C2 | Information from cancer program about accessing supports for children. I wanted information about counselling but did not receive it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). I wanted information about this service but did not | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26457 | CSC_PE_CHILDREN_SUPPORT_COUN_C3 | Information from cancer program about accessing supports for children. I did not receive information about counselling but did not need it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). I did not receive information about this service bu | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26458 | CSC_PE_CHILDREN_SUPPORT_COUN_C4 | Information from cancer program about accessing supports for children. Counselling - unsure or can't remember | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Counselling (e.g., Psychologist, Social Worker). Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26460 | CSC_PE_CHILDREN_SUPPORT_MED_C1 | Information from cancer program about accessing supports for children. I received information about psychiatric support | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26461 | CSC_PE_CHILDREN_SUPPORT_MED_C2 | Information from cancer program about accessing supports for children. I wanted information about psychiatric support but did not receive it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). I wanted information about this service but did not receive | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26462 | CSC_PE_CHILDREN_SUPPORT_MED_C3 | Information from cancer program about accessing supports for children. I did not receive information about psychiatric support but did not need it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). I did not receive information about this service but did no | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26463 | CSC_PE_CHILDREN_SUPPORT_MED_C4 | Information from cancer program about accessing supports for children. Psychiatric support - unsure or can't remember | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Psychiatric support (e.g., medications). Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26465 | CSC_PE_CHILDREN_SUPPORT_ONLINE_C1 | Information from cancer program about accessing supports for children. I received information about online cancer communities | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26466 | CSC_PE_CHILDREN_SUPPORT_ONLINE_C2 | Information from cancer program about accessing supports for children. I wanted information about online cancer communities but did not receive it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. I wanted information about this service but did not receive it | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26467 | CSC_PE_CHILDREN_SUPPORT_ONLINE_C3 | Information from cancer program about accessing supports for children. I did not receive information about online cancer communities but did not need it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. I did not receive information about this service but did not need it | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26468 | CSC_PE_CHILDREN_SUPPORT_ONLINE_C4 | Information from cancer program about accessing supports for children. Online cancer communities - unsure or can't remember | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Online cancer communities. Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26470 | CSC_PE_CHILDREN_SUPPORT_OTH1_C1 | Information from cancer program about accessing supports for children. I received information about this other service | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26471 | CSC_PE_CHILDREN_SUPPORT_OTH1_C2 | Information from cancer program about accessing supports for children. I wanted information about this other service but did not receive it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I wanted information about this service but did not rec | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26472 | CSC_PE_CHILDREN_SUPPORT_OTH1_C3 | Information from cancer program about accessing supports for children. I did not receive information about this other service but did not need it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I did not receive information about this service but di | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26473 | CSC_PE_CHILDREN_SUPPORT_OTH1_C4 | Information from cancer program about accessing supports for children. Other - unsure or can’t remember | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26474 | CSC_PE_CHILDREN_SUPPORT_OTH2_C1 | Information from cancer program about accessing supports for children. I received information about this other service | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26475 | CSC_PE_CHILDREN_SUPPORT_OTH2_C2 | Information from cancer program about accessing supports for children. I wanted information about this other service but did not receive it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I wanted information about this service but did not rec | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26476 | CSC_PE_CHILDREN_SUPPORT_OTH2_C3 | Information from cancer program about accessing supports for children. I did not receive information about this other service but did not need it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I did not receive information about this service but di | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26477 | CSC_PE_CHILDREN_SUPPORT_OTH2_C4 | Information from cancer program about accessing supports for children. Other - unsure or can’t remember | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26478 | CSC_PE_CHILDREN_SUPPORT_OTH3_C1 | Information from cancer program about accessing supports for children. I received information about this other service | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I received information about this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26479 | CSC_PE_CHILDREN_SUPPORT_OTH3_C2 | Information from cancer program about accessing supports for children. I wanted information about this other service but did not receive it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I wanted information about this service but did not rec | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26480 | CSC_PE_CHILDREN_SUPPORT_OTH3_C3 | Information from cancer program about accessing supports for children. I did not receive information about this other service but did not need it | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): I did not receive information about this service but di | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26482 | CSC_PE_CHILDREN_SUPPORT_OTH3_C4 | Information from cancer program about accessing supports for children. Other - unsure or can’t remember | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26331 | CSC_PE_CHILDREN_SUPPORT_OTSP1 | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26483 | CSC_PE_CHILDREN_SUPPORT_OTSP1_CA | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
|
|
| 26332 | CSC_PE_CHILDREN_SUPPORT_OTSP2 | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26484 | CSC_PE_CHILDREN_SUPPORT_OTSP2_CA | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
|
|
| 26333 | CSC_PE_CHILDREN_SUPPORT_OTSP3 | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26485 | CSC_PE_CHILDREN_SUPPORT_OTSP3_CA | Information from cancer program about accessing supports for children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
Formats
|
|
| 26486 | CSC_PE_CHILDREN_SUPPORT_USED_COMM_C1 | Supports used by your children. My children accessed local cancer communities | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26487 | CSC_PE_CHILDREN_SUPPORT_USED_COMM_C2 | Supports used by your children. My children did not access local cancer communities but would've benefitted from it | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26488 | CSC_PE_CHILDREN_SUPPORT_USED_COMM_C3 | Supports used by your children. My children did not access local cancer communities and did not need to | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26489 | CSC_PE_CHILDREN_SUPPORT_USED_COMM_C4 | Supports used by your children. Local cancer communities - unsure or can't remember | Which of the following best describes the supports your child/children used? Local cancer communities (e.g., Wellspring, Kids Cancer Care). Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26490 | CSC_PE_CHILDREN_SUPPORT_USED_COUN_C1 | Supports used by your children. My children accessed counselling | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26491 | CSC_PE_CHILDREN_SUPPORT_USED_COUN_C2 | Supports used by your children. My children did not access counselling but would’ve benefitted from it | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26492 | CSC_PE_CHILDREN_SUPPORT_USED_COUN_C3 | Supports used by your children. My children did not access counselling and did not need to | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26493 | CSC_PE_CHILDREN_SUPPORT_USED_COUN_C4 | Supports used by your children. Counselling - unsure or can't remember | Which of the following best describes the supports your child/children used? Counselling (e.g., Psychologist, Social Worker). Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26494 | CSC_PE_CHILDREN_SUPPORT_USED_MED_C1 | Supports used by your children. My children accessed psychiatric support | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26495 | CSC_PE_CHILDREN_SUPPORT_USED_MED_C2 | Supports used by your children. My children did not access psychiatric support but would've benefitted from it | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26496 | CSC_PE_CHILDREN_SUPPORT_USED_MED_C3 | Supports used by your children. My children did not access psychiatric support and did not need to | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26497 | CSC_PE_CHILDREN_SUPPORT_USED_MED_C4 | Supports used by your children. Psychiatric support - unsure or can't remember | Which of the following best describes the supports your child/children used? Psychiatric support (e.g., medications). Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26498 | CSC_PE_CHILDREN_SUPPORT_USED_ONLINE_C1 | Supports used by your children. My children accessed online cancer communities | Which of the following best describes the supports your child/children used? Online cancer communities. My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26499 | CSC_PE_CHILDREN_SUPPORT_USED_ONLINE_C2 | Supports used by your children. My children did not access online cancer communities but would've benefitted from it | Which of the following best describes the supports your child/children used? Online cancer communities. My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26500 | CSC_PE_CHILDREN_SUPPORT_USED_ONLINE_C3 | Supports used by your children. My children did not access online cancer communities and did not need to | Which of the following best describes the supports your child/children used? Online cancer communities. My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26501 | CSC_PE_CHILDREN_SUPPORT_USED_ONLINE_C4 | Supports used by your children. Online cancer communities - unsure or can't remember | Which of the following best describes the supports your child/children used? Online cancer communities. Unsure or can't remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26502 | CSC_PE_CHILDREN_SUPPORT_USED_OTH1_C1 | Supports used by your children. My children accessed this other service | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26503 | CSC_PE_CHILDREN_SUPPORT_USED_OTH1_C2 | Supports used by your children. My children did not access this other service but would've benefitted from it | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26504 | CSC_PE_CHILDREN_SUPPORT_USED_OTH1_C3 | Supports used by your children. My children did not access this other service and did not need to | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26505 | CSC_PE_CHILDREN_SUPPORT_USED_OTH1_C4 | Supports used by your children. Other - unsure or can’t remember | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26506 | CSC_PE_CHILDREN_SUPPORT_USED_OTH2_C1 | Supports used by your children. My children accessed this other service | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26507 | CSC_PE_CHILDREN_SUPPORT_USED_OTH2_C2 | Supports used by your children. My children did not access this other service but would've benefitted from it | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26508 | CSC_PE_CHILDREN_SUPPORT_USED_OTH2_C3 | Supports used by your children. My children did not access this other service and did not need to | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26509 | CSC_PE_CHILDREN_SUPPORT_USED_OTH2_C4 | Supports used by your children. Other - unsure or can’t remember | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26510 | CSC_PE_CHILDREN_SUPPORT_USED_OTH3_C1 | Supports used by your children. My children accessed this other service | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children accessed this service | Coded | 0, 1, 8888, 9999 |
Formats
|
|
| 26511 | CSC_PE_CHILDREN_SUPPORT_USED_OTH3_C2 | Supports used by your children. My children did not access this other service but would've benefitted from it | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service but would’ve benefitted from it | Coded | 0, 1, 8888, 9999 |
Formats
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| 26512 | CSC_PE_CHILDREN_SUPPORT_USED_OTH3_C3 | Supports used by your children. My children did not access this other service and did not need to | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): My child/children did not access this service and did not need to | Coded | 0, 1, 8888, 9999 |
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| 26513 | CSC_PE_CHILDREN_SUPPORT_USED_OTH3_C4 | Supports used by your children. Other - unsure or can’t remember | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): Unsure or can’t remember | Coded | 0, 1, 8888, 9999 |
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| 26369 | CSC_PE_CHILDREN_SUPPORT_USED_OTSP1 | Supports used by children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26514 | CSC_PE_CHILDREN_SUPPORT_USED_OTSP1_CA | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
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| 26370 | CSC_PE_CHILDREN_SUPPORT_USED_OTSP2 | Supports used by children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26515 | CSC_PE_CHILDREN_SUPPORT_USED_OTSP2_CA | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
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| 26371 | CSC_PE_CHILDREN_SUPPORT_USED_OTSP3 | Supports used by children. Other - please specify | Which of the following best d????escribes information you received from the cancer program about where or how to access supports for your child/children? Other – please specify one topic (optional): | Text | |||
| 26516 | CSC_PE_CHILDREN_SUPPORT_USED_OTSP3_CA | Supports used by your children. Other - please specify | Which of the following best describes the supports your child/children used? Other – please specify one topic (optional): | Coded | 1, 8888, 9999 |
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| 26517 | CSC_PE_SUPPORT_TYPE | Preference for in-person or virtual supports | Would you have preferred in-person or virtual supports? | Coded | 1, 2, 3, 4, 8888, 9999 |
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| 26518 | CSC_PTE_CANCER_DX | Cancer Diagnosis | Have you ever received a cancer diagnosis?? | Coded | 0, 1, 8888, 9999 |
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| 26519 | CSC_PTE_CANCER_DX_PROV | Place of diagnosis | Were you diagnosed in Alberta or elsewhere?? | Coded | 1-14, 8888, 9999 |
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| 26520 | CSC_PTE_CANCER_TX | Type of cancer treatment | Which of the following statements best describes your cancer treatment(s) (including surgery): | Coded | 1, 2, 3, 88, 8888, 9999 |
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| 26521 | CSC_PTE_CANCER_TX_PROV_C1 | Treatment received in Alberta or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Alberta | Coded | 0, 1, 8888, 9999 |
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| 26522 | CSC_PTE_CANCER_TX_PROV_C10 | Treatment received in Prince Edward Island or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Prince Edward Island | Coded | 0, 1, 8888, 9999 |
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| 26523 | CSC_PTE_CANCER_TX_PROV_C11 | Treatment received in Quebec or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Quebec | Coded | 0, 1, 8888, 9999 |
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| 26524 | CSC_PTE_CANCER_TX_PROV_C12 | Treatment received in Saskatchewan or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Saskatchewan | Coded | 0, 1, 8888, 9999 |
Formats
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| 26525 | CSC_PTE_CANCER_TX_PROV_C13 | Treatment received in Yukon or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Yukon | Coded | 0, 1, 8888, 9999 |
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| 26526 | CSC_PTE_CANCER_TX_PROV_C14 | Treatment received in Outside of Canada or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Outside of Canada | Coded | 0, 1, 8888, 9999 |
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| 26527 | CSC_PTE_CANCER_TX_PROV_C2 | Treatment received in British Columbia or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. British Columbia | Coded | 0, 1, 8888, 9999 |
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| 26528 | CSC_PTE_CANCER_TX_PROV_C3 | Treatment received in Manitoba or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Manitoba | Coded | 0, 1, 8888, 9999 |
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| 26529 | CSC_PTE_CANCER_TX_PROV_C4 | Treatment received in New Brunswick or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. New Brunswick | Coded | 0, 1, 8888, 9999 |
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| 26530 | CSC_PTE_CANCER_TX_PROV_C5 | Treatment received in Newfoundland and Labrador or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Newfoundland and Labrador | Coded | 0, 1, 8888, 9999 |
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| 26531 | CSC_PTE_CANCER_TX_PROV_C6 | Treatment received in Northwest Territories or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Northwest Territories | Coded | 0, 1, 8888, 9999 |
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| 26532 | CSC_PTE_CANCER_TX_PROV_C7 | Treatment received in Nova Scotia or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Nova Scotia | Coded | 0, 1, 8888, 9999 |
Formats
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| 26533 | CSC_PTE_CANCER_TX_PROV_C8 | Treatment received in Nunavut or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Nunavut | Coded | 0, 1, 8888, 9999 |
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| 26534 | CSC_PTE_CANCER_TX_PROV_C9 | Treatment received in Ontario or elsewhere | Were you treated (or are you receiving treatment) in Alberta or elsewhere? Select all that apply. Ontario | Coded | 0, 1, 8888, 9999 |
Formats
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| 26535 | CSC_PTE_CANCER_TX_YEAR | Year of cancer treatment completion | When did you complete treatment? Please select the year if you’re not sure, use your best estimate.? Year: | Coded | 1939-2025, 8888, 9999 | Year |
Formats
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| 26536 | CSC_PTE_INFO_TOPICS_COMM | Given information on community resources | After completing cancer treatments, were you given enough information about each of the following topics: Community resources | Coded | 0, 1, 2, 3, 8888, 9999 |
Formats
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| 26537 | CSC_PTE_INFO_TOPICS_EMOT | Given information on emotional challenges | After completing cancer treatments, were you given enough information about each of the following topics: Emotional challenges or concerns (e.g., depression, anxiety) | Coded | 0, 1, 2, 3, 8888, 9999 |
Formats
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| 26538 | CSC_PTE_INFO_TOPICS_LIFE | Given information on lifestyle challenges | After completing cancer treatments, were you given enough information about each of the following topics: Other lifestyle challenges or concerns (e.g., physical activity, sleep) | Coded | 0, 1, 2, 3, 8888, 9999 |
Formats
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| 26539 | CSC_PTE_INFO_TOPICS_NUT | Given information on nutritional concerns | After completing cancer treatments, were you given enough information about each of the following topics: Nutritional concerns (diet, changes in appetite, etc.) | Coded | 0, 1, 2, 3, 8888, 9999 |
Formats
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| 26540 | CSC_PTE_INFO_TOPICS_PHYS | Given information on physical challenges | After completing cancer treatments, were you given enough information about each of the following topics: Physical challenges or concerns (e.g., pain, fatigue) | Coded | 0, 1, 2, 3, 8888, 9999 |
Formats
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| 26541 | CSC_PTE_INFO_TOPICS_PRAC | Given information on practical challenges | After completing cancer treatments, were you given enough information about each of the following topics: Practical challenges or concerns (e.g., financial aid) | Coded | 0, 1, 2, 3, 8888, 9999 |
Formats
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| 26542 | CSC_PTE_INFO_TOPICS_SIGN | Given information on signs of cancer returning | After completing cancer treatments, were you given enough information about each of the following topics: Signs of cancer returning | Coded | 0, 1, 2, 3, 8888, 9999 |
Formats
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| 26543 | CSC_PTE_LETTER | Received follow-up care written plan | After completing cancer treatments, did you receive a written plan or letter outlining what to expect for your follow-up care? | Coded | 0, 1, 99, 8888, 9999 |
Formats
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| 26544 | CSC_PTE_LETTER_INFO | Did plan provide all information | Did this plan or letter provide the information you needed? | Coded | 0, 1, 2, 8888, 9999 |
Formats
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| 26545 | CSC_PTE_PCP_CC | Was primary care provider informed | When you most recently saw your primary care provider, do you feel they knew enough about your cancer care? | Coded | 0, 1, 2, 8888, 9999 |
Formats
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| 26546 | CSC_PTE_PCP_CC_COORD | Satisfaction between cancer team and provider | Overall, how satisfied have you been with the coordination between the cancer care team and your primary care provider? | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26547 | CSC_PTE_PCP_CURRENT | Currently have a primary care provider | Do you currently have a primary care provider (such as a family doctor or community nurse practitioner)? | Coded | 0, 1, 8888, 9999 |
Formats
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| 26548 | CSC_PTE_PCP_DX | Primary care provider present at diagnosis | Did you have a primary care provider (such as a family doctor or community nurse practitioner) at the time of your diagnosis? | Coded | 0, 1, 8888, 9999 |
Formats
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| 26549 | CSC_PTE_PCP_TX | Primary care provide present at time of treatments | Did you have a primary care provider (such as a family doctor or community nurse practitioner) at the time you completed cancer treatments? | Coded | 0, 1, 8888, 9999 |
Formats
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| 26550 | CSC_PTE_POST_TX_CARE_SAT | Satisfication with post-treatment follow up | Overall, how satisfied have you been with your post-treatment follow-up care? | Coded | 1, 2, 3, 4, 5, 8888, 9999 |
Formats
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| 26551 | CSC_PTE_TOPICS_DISC_C1 | Topics cancer care provider discussed. Treatments you would or would not want. | Which of the following topics, if any, has a cancer care provider spoken to you about? Select all that apply. Treatments you would or would not want related to controlling your cancer | Coded | 0, 1, 8888, 9999 |
Formats
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| 26552 | CSC_PTE_TOPICS_DISC_C2 | Topics cancer care provider discussed. Your values, spiritual beliefs, or other practices that are important. | Which of the following topics, if any, has a cancer care provider spoken to you about? Select all that apply. Your values, spiritual beliefs, or other practices that are important to you as you make decisions about your health care | Coded | 0, 1, 8888, 9999 |
Formats
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| 26553 | CSC_PTE_TOPICS_DISC_C3 | Topics cancer care provider discussed. Fears and concerns. | Which of the following topics, if any, has a cancer care provider spoken to you about? Select all that apply. Your fears and concerns | Coded | 0, 1, 8888, 9999 |
Formats
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| 26554 | CSC_PTE_TOPICS_DISC_C4 | Topics cancer care provider discussed. Prognosis. | Which of the following topics, if any, has a cancer care provider spoken to you about? Select all that apply. Prognosis (life expectancy, how your illness may progress) | Coded | 0, 1, 8888, 9999 |
Formats
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| 26555 | CSC_PTE_TOPICS_DISC_C5 | Topics cancer care provider discussed. Advance Care Planning. | Which of the following topics, if any, has a cancer care provider spoken to you about? Select all that apply. Advance Care Planning and/or Goals of Care documentation | Coded | 0, 1, 8888, 9999 |
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| 26556 | CSC_PTE_TOPICS_DISC_C6 | Topics cancer care provider discussed. Connecting with palliative care services. | Which of the following topics, if any, has a cancer care provider spoken to you about? Select all that apply. Connecting with palliative care services in the cancer program or community. | Coded | 0, 1, 8888, 9999 |
Formats
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| 26557 | CSC_PTE_TOPICS_DISC_C7 | Topics cancer care provider discussed. None of the above. | Which of the following topics, if any, has a cancer care provider spoken to you about? Select all that apply. None of the above | Coded | 0, 1, 8888, 9999 |
Formats
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| 26558 | CSC_PTE_TX_INTENT | Intent of recent treatment | What was the intent of your most recent treatment(s)? | Coded | 1, 2, 3, 99, 8888, 9999 |
Formats
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| 26559 | CSC_PTE_WAIT_TIMES_DX | Reasonable wait time for Diagnosis | To what extent do you agree that the wait times for the following steps in your care journey were reasonable? Diagnosis | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26560 | CSC_PTE_WAIT_TIMES_SPEC | Reasonable wait time for a Specialist consult | To what extent do you agree that the wait times for the following steps in your care journey were reasonable? Specialist consult | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26561 | CSC_PTE_WAIT_TIMES_TX | Reasonable wait time for Treatment | To what extent do you agree that the wait times for the following steps in your care journey were reasonable? Treatment | Coded | 1, 2, 3, 4, 5, 6, 8888, 9999 |
Formats
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| 26459 | O_CSC_CE_CANCER_TX_C9 | Loved one cancer treatments during your caregiving - Other (please specify): | What treatment(s) did your loved one receive for their cancer, during the time you were providing caregiver support? Other (please specify): | Text |
| Var ID | Var Name | Label | Description | Type | Valid Values | Unit | |
| 26217 | CSC_AGE_AT_SURVEY_COMPLETION | Age at Survey Completion | Age at Survey Completion | Unk |
Derived Code
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| 26218 | CSC_CompletionMethod | Completion Method | Completion Method: SurveyComplete/Force Complete | Text |
| Var ID | Var Name | Label | Description |
| Var ID | Var Name | Label | Description |
| Var ID | Var Name | Label | Description |
| Var ID | Var Name | Label | Description |
| Var ID | Var Name | Label | Description |
| Var ID | Var Name | Label | Description |